I'm a bit new here but was wondering if anybody has had their feet kind of stick to the ground. It's crazy I know but on at least three occasions it feels like my foot stuck to the ground. For instance; I start to turn and the foot doesn't turn. Is this a by product of PD.
thanks
I believe it is as I have to help my husband a lot when he's walking and sometimes it seems like minutes (prob seconds) before he can make a foot move. I have read when this happens in an arm or leg to try to distract yourself and think of something else or talk to someone near as it takes your mind of the muscle freeze and it will help it to relax. Good luck. Husbands neuro told him to be especially careful if he is turning.
Yes! Way back in 1982, while watching my son play rugby, my late wife asked me to get some hot-dogs for us. I had been standing in the one position for several minutes, and when I tried to turn around and walk to the hot-dog stand I could not move either of my feet.
I was diagnosed with Pd in 1992 and have subsequently learned how to overcome this problem by learning how to take conscious control of my movements. Read my profile to learn more about what I do.
Ranger,
'JohnPepper', who has Essential Tremor - NOT PD, has been lurking in the peripheries of the 'Parksinson's' forum for years in order to self-promote his mythical tale of Parkinson's "reversal" and - most importantly - to generate interest in (and financing for) his annual "Reverse Parkinson's Disease" roadshow. Observe in the months ahead as he obnoxiously invades the various PD-related topics to shift the focus onto himself and his highly creative "My Story" until he becomes, yet again, a virtual pop-up ad in the HU PD forum.
When evaluating the credibility of JP's PD "reversal" tales it's important to keep a few established facts in mind: Essential Tremor (a non-parkinsonian condition) is 8 times more common than genuine Parkinson's; JP's claims of having PD and since experiencing “reversal” have NEVER been supported by a single qualified neurologist; and... JP himself admits in his own earlier posts to an original diagnosis of Essential Tremor (not Parkinson's): "When I was diagnosed in 1992 my neurologist said that my tremor was called an essential tremor, [m]eaning that I shake when I try to do fine motor movement. That is the opposite of the resting tremor, which only happens when not doing anything.” Source: healthunlocked.com/parkinso...
And in an even earlier post, "I do not have a resting tremour, but I do have an essential tremour. I have found that I am unable to help those people with the resting tremour. I must assume that their Pd is therefore very different to mine... Those who have a walking problem and a resting tremour I have not been able to help.” Source: healthunlocked.com/parkinso...
Despite writing a book on the subject, JP remains remarkably confused about the distinctions between his Essential Tremor and genuine Parkinson's as he continues to obsessively hype fast-walking “PD reversal” as a 'cure-all' to desperate newcomers to the forum. Furthermore - despite writing the farcical "Reverse Parkinson's Disease" booklet - he curiously continues to stubbornly dodge the commonly available means to definitively confirm a genuine parkinsonian condition (DaTscan).
Until JP presents the results of a positive DaTscan (indicating a GENUINE parkinsonian condition), a healthy dose of skepticism remains your best medicine.
Do you men to tell me that none of the neurologists, who have confirmed the diagnosis of Pd, is qualified?
Do you mean to tell me that you cannot have Pd and essential tremor?
Do you mean to tell everybody that you know better than 4 neurologists, and a sniffer dog, who have all examined me, do not know what they are doing?
You are wasting your time!
Exactly. After 15 years of making your PD "reversal" claims you should be able to produce more than vague references to "4 neurologists".
Produce the name of a SINGLE credentialed neurologist willing to go on the record to support your ridiculous claims of Parkinson's "reversal" and I'll treat you as the messiah you imagine yourself to be rather than the hapless buffoon suspected. Anxiously awaiting your revelations...
Norman Doidge, MD confirmed John Pepper's PD and his results. Also explores many other astounding remedies for conditions that we (as it typical medical and medicated humans and their doctors) find difficult to believe possible.
N.Doidge is a psychiatrist with a book describing the 'miracles of neurogenesis' to sell. He needed a compilation of good yarns to prop up his book's central theme and JP's tale served that purpose. Ignoring a few pesky details (i.e., JP's failure to respond to Sinemet) to enhance the story is what writers do... it's called 'literary license'.
The fact remains: not a single qualified NEUROLOGIST - in the 15 years since JP's "Reverse Parkinson's Disease" farce debuted - has supported his "reversal" contentions. Nor has a single credible case of said PD "reversal" come forward to reveal their miraculous recovery during that same period. Engage brain, think.
I will not give you their names on this blog. You give me your email address and I will give you their names.
I am certainly not the only one interested in some form of corroboration (after 15 years) of your lofty PD "reversal" claims. Are you now suggesting that you DO have one or more neurologists who endorse your PD "reversal" claims... but they are simply too shy to permit their names to be made public?!? Are you REALLY incapable of seeing how ridiculous such an assertion is?
You've managed to duck and dodge since compiling your booklet 15 years ago. If you really had a single qualified neurologist who supported your farce, further ducking and dodging would be unnecessary. Clearly, you have nothing.
PDC. It's certainly been made clear to me that since I've had PD, I've met many other sufferers who have both ET and PD. I have PD myself but have a 'no-no' head tremor which mostly is suggestive of ET (it responds to some degree to beta blockers). But my smell has gone, I'm slow and my right arm is a bit useless. Surely you've been around the block long enough to know by now that PD - in one way - is more of a collection of neurological variances that have conveniently been lumped together but that as time is progressing, the case for a singular disease is simply falling apart? As for neurologists! The longer I spend time with them the firmer I am concluding that the training they receive isn't fit for purpose. Either that or neurological conditions are soooooooooooooo profoundly complex that they haven't got a cat in hell's chance of seriously grappling with the issues concerned. Many seem to have 'given up' and present with apathy, arrogance, boredom or a blend of all three. John Pepper will understand what he's been through and continues to go through better than any neurologist (and the same's for you and I). Mine doesn't even know what Mucuna is for God's sake. Also, from what I remember of his book, which I read ages ago, he refers to many symptoms which are far more suggestive of PD such as temperature deregulation, swallowing problems etc. But this doesn't mean he also can't have ET in my opinion.
Jeeves... you forgot to note that JP has successfully "reversed" all those ET/PD annoyances (which of course justifies his current role as HU PD forum's most visible pop-up ad).
Jeeves, It might be interesting to read the book again and see if the symptoms are vague enough and would fit with depression, stress and advancing age.
I agree that there are varieties of PD but there is also some areas of commonality or do you not think so? The two main categories are stiffness dominant and tremor dominant.
To be diagnosed you need 3 of the four main movement symptoms
Until I brought it up on here Mr P believed his tremor which he described as essential tremor was the classic parkinsons tremor (he didnt know they were different ) .
Yes you can have ET along with resting tremor but not instead of. Mr P does not have a resting tremor. Does that leave Mr P with the stiffness dominant form of PD ?? !!
Some might believe in reversal of pd by something as simple as fast walking while i tend to think that such claims are made by people who self diagnosed or were misdiagnosed.
Interesting thatMr Doidge has admitted that Mr P’s parkinsons is an unusual type. Unfortunately I cant find the referrence right now.
I hereby declare PDConscience the "winner" in this debate. Too much weaving and dodging Mr. Pepper. Further I respectfully request that both of you cease and desist from creating further noise on HealthUnblocked. Perhaps you can take your debate offline and email or phone each other.
As far as promoting this book, is there a Moderator on HealthUnblocked to basically inform Mr. Pepper that HU is not an appropriate Forum for promotion of his book.
Where do I promote my book?
A very common symptom.i would highly recommend seeing a physio or OT with a special interest in PD. They can teach you some strategies to deal with this. Good luck!
I think this is what is called 'freezing' and there is a lot of research into this handicap, but no solution so far.
Ted
Whether John Pepper has PD or not his posts are very helpful
his posts are very helpful
Thats good Roy but I find they generally say the same thing. To me they demonstrate very little understanding of the experience of PD. The suggestions are general good health ones that would be appropriate for any health condition.
He was removed from his role in the Sth African PD Society years ago as they did not accept his claims.
I have 2 types of freezing.
1 - cinder block tied to my leg - running out of dopamine I believe
2 - brain goes into panic mode because it is taking in to much info - I have to remove the stimulus or myself from the stimulus
My right foot “catches” when I am doing my fast walking. I really have to focus on lifting my feet when I walk. I notice it particularly when my meds are wearing off.
I call it “Gummy” foot
Hi ranger6970
I was diagnosed with pd 12 years ago but had symptoms for 30 years. The first one i remember i could not walk for a week for so and the doctors found no reason for it.
But that is off subject.
I believe it is part of Pd. On at least 10 occasions in past 3 years i have frozen in mid stride. All it takes for me to get going is for someone to give me a push or pull and i am on my way.
I asked one man to give me a hand and he just turned and ran away but all other times people have been very helpful. I can feel it coming on as i walk. I just start slowing down and stop. i can move any other part of my body but just can't move my feet i feel some strange when it happens.
My husband has freezing episodes mostly when he stands from a chair and wants to begin walking. This lasts quite a few seconds, especially later in the day. His Dr has recommended a laser cane, which projects a beam of light on the floor. He would concentrate on the beam and stepping across it, rather than the fact that he is “stuck.” Google laser cane for more info.
Club foot
foot stimulation is an effective (temporary) high
One foot in front of the other.
Position of relief from foot dystonia
