Parkinson's has made me a driven man. At the end of each day if i have not repaired some thing or helped some one i feel like i have wasted a day of the few i have left. I may have 20 years to live or 20 days who knows. I just can not set still for more than a hour so i just get up and do some thing.
In the last 12 months i have bought and repaired and sold 62 riding mowers. All at the lowest price of any one around. I installed 1300 sq ft of tile in my home. Painted the out side. Maintained 2 acres that my house sets on. Built a mower to tow behind my riding tractor and now i can mow 8 ft wide . It takes half the time to mow now.
Helped my son install cameras on his house. Installed stone on my girls fire place it was 12 ft high and 6 feet wide. Tiled counter tops and back splash in my daughters home. Jacked up my brothers house. Had to drag 50 pound jacks 30 ft in a 12 inch crawl space. I also took four 150 pound angle irons with me to reinforce the beams.
Took me 3 days.
Went to my neighbors farm and replaced a water pump on a old ford tractor. Took me 12 hours.
I also work out 3 or 4 times a week.
Yes i have had Pd for 12 years.
Today was a bad day. I was and am stiff and slow just could not get going. Made a trip to the store but not much more.
Tomorrow will be better.
Written by
Bailey_Texas
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Great determination, my husband for many years said mind over matter, I think it helped him to push on. God bless, prayers you are able to keep doing anything and everything your wants are.
Hi Bailey a man after my win heart!I still do every thing I used to it just takes a lot longer. This summer renewed the kitchen and bathroom in our rental property,laid a new patio, replaced the fence, plus a host of other chores.
Had 6 km walk yesterday,Off out now for a powerwalk only 40 mins but it does help. Tennis tonight, bike ride tomorrow.
Whilst PD is living with me it's not controlling my life,I am!
Bailey you are truly an inspiration to more people than you realize. I enjoy reading your action posts. Not many can go at your pace. The greatest, Mohammad Ali, said it best - "Don't count the days, rather make the days count." You are one of the best. Thank you.
Bailey, Thanks for the inspirational message. I swear it made me feel better. I am only on my year #3 into my PD journey but sadly I lack your enthusiasm.
My life just opposite, No life really. Nights are scary, No mobility Uncomfortable sitting, laying, walking standing. It’s a living nightmare.
So much pain, especially in shoulder from all day Dyskenesia.......Cortisone shot no relief.
Nothing I read here genuinely helps. I continue to read though because have to occupy my mind as sleep is a thing of the past.
Not badly depressed as I work hard to prevent that. I figure if depressed then no hope at all.
My reality and no sugar coated words fix it. Definitely not a Pollyanna.
Meds .....MADOPAR Sifrol ER. all day as I have a kitten to look after. She’s adorable. Rely’s on me so I have to take the wretched stuff.
Hard to type now but I do think clearly. Wish I could be upbeat but you all know where I’m coming from .
I wish wish wish wish but have to accept wishing will not change things.
Wish some one would make me a coffee ....."goodee”. It’s 4 am. Only a couple of hours to go to daybreak. Watch TV....maybe......read..maybe Play music .....yes
There’s no doubt that PD is tough, especially after the initial stages! Every day my shoulder bothers me, and peripheral neuropathy is with me always. Pins and needles, pain never goes away. In the early stages, I was able to deal with this better. I do understand a little about what you are going through, Bridielina. I’m sorry that you feel the way you do. I do, too, at times. However; I use music to distract me and get my mind on other things. I try very hard to not dwell on what I’ve lost, and it is scary, thinking about what the future holds, so I try not to dwell on that either. I concentrate on things I still can do, and challenge myself to move around more, even though it’s so painful. Sleep is very difficult for me, and sleeping pills are not the answer for me. You are right, wishing does not change things. It seems like the only people that really understand are others that have this very complicated disorder. Let music carry you into another realm and just enjoy! We must find ways to get through this and never give up hope!!!
May I suggest breathing techniques and meditation for you to help. Art of living is a wonderful program which offers a happiness course where you can learn breathing techniques that really help! God bless you
When I’m on I move move move....housework mainly but I don’t stop so I call that exercise....drive sometimes but have to be careful and not go far from home. To local supermarket and pharmacy about 3 minute drive.b
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