The worst part

[Jdog]

The worst part is never getting a break. At the end of the day when I relax on the couch, my hand is either cramped, shaking, or both. This affliction is ALWAYS there.

[johntPM]

Jdog,

In my experience, it is rare for a properly medicated PwP to get no relief. I think you should see your doctor. It may be that your PD drug regimen can be improved.

Without knowing anything about you, it isn't possible to say much more. Perhaps you would like to provide details: age, years since PD diagnosis, drug regimen (name, time, dose), symptoms and other illnesses.

John

[Michael1953 in reply to johntPM]

Up the meds,?

[Rosabellazita in reply to johntPM]

No other illness. Have not got an official diagnosis..started tiny tremor in pinkie in 2011. Just started sinemet 1/2 three x a day 25/100 on july 26..will be increased aug 15 to one three x a day.age..66. Tremor only.

[JohnPepper]

Advice is easy, I know. If you forget about the Pd, even though it is always it is always there, and get on with something that absorbs your total attention, it will help a great deal. That is where exercise does so much good!

[Rosabellazita in reply to JohnPepper]

When i exercise the tremor shakes even faster.

[JohnPepper in reply to Rosabellazita]

If you clench your fists, do you still tremor? I hold a one kilogram weight in each hand, while I walk and that cuts out the tremor for me.

[Rosabellazita in reply to JohnPepper]

Still tremor with fist. Ill try the weight

[JohnPepper in reply to Rosabellazita]

If you are holding your fist tightly closed then your's is not a resting tremor, in my opinion. That s because the hand is not resting it is active. Speak to yur neuro about it.

[Hikoi in reply to Rosabellazita]

I have a resting tremor. When I am un medicated and I make a fist it only stops the tremor a very short while.

The only thing that i know stops me tremoring is medication of the right strength. I find sleep and exercise make the pills work better .

There are different tremor types but from what i read you have typical symptoms of a resting tremor.

[ddmagee1]

The right dosage of Sinemet and timing of food intake makes a big difference in controlling shaking and cramping for me; however, at the end of the day, there's always some period of time when I shake some and feel cramping. Gait and swallowing and digestive symptoms seem to bother me each day, much more than tremor and cramping. Yes, PD is always with one, when symptoms have advanced enough to become troublesome.

[swva]

I recently told someone that it seems like pwp don't have good days and bad days, but rather good hours and bad hours. Thankfully I have many more good hours than bad hours.

[Hikoi]

Yes I totally agree jdog. Though I do get a break from the symptoms i seem to spend that time getting things done then when I want to relax, there he is at it again shaking me up!

[Bridielena]

Exactly. Trying to relax seems to bring on ferocious Dyskinesia like it's taunting me to stop trying and get on with something else. 12 years now and meds losing efficacy. I'm all over the place with them as I know it's the meds causing the Dyskinesia .....Orangatang(?) like movements which have given me a shoulder problem,......less meds, less Dyskinesia, less mobility. Simply have to have a thorough assessment when I can get to Neuro ......3 hour drive there and 3 hours back .....

Also to beat morning Dystonia now I sleep semi reclined in tip up chair. My bed has seen the last of me as too hard to get out and if I haven't had a pillow under knees the Dystonia is sure to surface. It would love to see me fall flat on my face. It's a race to the toilet you see before I make a mess on the floor.....ha ha race......mind races, body refuses........I beat him this morning though. Thankfully though at least I get good rest in the chair even though Husband hates me not sharing our bed anymore.

Half an hour to first meds. of the day which may kick in within 20 mins or it may take longer. It starts all over again with my Orang. trying to slap my face but I have to entertain him because he won't go away which is why I play around with my dosesge.

On Cannabis Oil but I don't think its helping.

HGE

[Hikoi in reply to Bridielena]

Its a kind of different life isnt it! Sorry to read about the cannibas oil as i want to try that next.

[Bridielena]

Yeah different alright. Re C. Oil......if I could get hold of the 'whole' thing I.e. With nothing removed, do believe 'I'd be dancing on the ceiling ' but as I've never smoked anything in my life don't know where to start.

Other symptoms driving me crazy are excessive sweating and dizziness . Was prescribed anti depressants, oh forget, but a few years ago now and only now found out its ZOLOFT agh! am weaning myself off because it could be contributing to those unwanted symptoms. Only way to find out.

Once upon a time I was whole and healthy and Once upon a time I would never go against medical advice and Once upon a time I was very naive..... not any more.

Time for Sundowners...G and T I think.

HGE

[Cbgs in reply to Bridielena]

I've been on Zoloft for years

Idk there was an interference ?

Would u pls elaborate ?

[Bridielena in reply to Cbgs]

Some time ago was made aware how dire the side effects could be . Had I been made aware that the Sertra was Zoloft I would have never started. There are older drugs which, perhaps , would be just

as useful.The constant dizziness and sweating I experience I'm putting down to this drug. Just my 'take' on my condition. If I could be somewhat free of these extra symptoms it would make life more bearable.