This sucks but it could be worse! - Cure Parkinson's

Cure Parkinson's

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This sucks but it could be worse!

Hmcoops profile image
10 Replies

I'm 47. I was diagnosed 2years ago finally after years of searching. I've responded to meds quite well and have become an advocate and spokesperson. I've started doing mud races and challenging myself more than ever.

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Hmcoops profile image
Hmcoops
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10 Replies
TheresaCurley profile image
TheresaCurley

Welcome to the forum. There are a lot of knowledgeable great folks here that have helped me a lot on this PD journey. I was only diagnosed last summer but just as you I had been searching for answer for years. I too am doing well on my medication (Sinemet and Azilect) however I still have major fatigue that has not improved with the meds.

Bailey_Texas profile image
Bailey_Texas in reply to TheresaCurley

Exercise will help with fatigue. The stronger you are the less effort it takes to do things.

wifeofparky profile image
wifeofparky

Good for you!! Keeping active is so very important. Continued success to you!

Hmcoops profile image
Hmcoops in reply to wifeofparky

Thank you!

Hikoi profile image
Hikoi

Hi Heather

Welcome

If you want a meaningful challenge Maybe this would interest you!

The Ambassador Project - Machu piccu 2017 There is a facebook page and this video link. Plus google will direct you to other pages.

vimeo.com/168472402

laglag profile image
laglag in reply to Hikoi

Hikoi

Amazing, beautiful, courageous, inspiring! Did you participate in any of that?

Hikoi profile image
Hikoi in reply to laglag

Laglag

Its later this year and im not going, ive beem there and im not fit enough to enjoy it. Its open for everyone so spread the word, and consider going yourself! there are a few places left but not many!

Here is the fb psge and link to a blog by a group going on it. The last walk / climb was in Sicily about 18 months ago.

Wouldnt it be great to go though!

parkersclimb.com

facebook.com/groups/ambassa...

laglag profile image
laglag

Tell us more about the mud races! That sounds interesting. I was about the same age you were when I was first diagnosed and that was 13 yrs ago. I'm a part of Rock Steady Boxing (RSB) a non-contact boxing program strictly for PD that was started 10 yrs ago. Check it out sometime.

rocksteadyboxing.org

You'll find my testimonial under Debbie (purple shirt)

Chicafromchitown profile image
Chicafromchitown in reply to laglag

laglag

I am 46 yrs dx 11yrs ago I've managed my pd well without excersise and poor diet until a few months ago my right foot started freezing, I guess it's a wake up call, is it too late for me to start working out? and what kind of diet should I start on? Thanks

laglag profile image
laglag in reply to Chicafromchitown

I feel it's never too late. Rock Steady Boxing is a very good place to start exercising. Where do you live in the US? Check out rocksteadyboxing.org & see if they have one close to you. Watch some of the videos. It's a really fun place & it works. It's non-contact boxing and it's only for PwP's and it's for all levels.

As far as diet, I try to stay away from processed food, sugar, and try to limit my quantity (it's tough though). Try to drink lots of water and lots of antioxidants (vit C, blueberries, etc.

Hope this helps.

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