Just when think things are going to get better It all falls apart again. Today after a six month wait we had a seating clinic. Just as I was going to warm up the van it would not start. My new staff that went with us for a Christmas program had left the dome lights on. That was Friday night. I had been minus 23 and too cold to go out since than. There is no wheelchair accessible transportation in our rural Towne accept my own van. My van was parked at the far end of the long garage and booster cables could not reach. Lucky for me my son was working in town and came with longer cables. Made it just on time. Got the acessent done for a tilt in space and appeal process started. Now I am notified that I will need to pay for a minimum of three hours for a one hour shift to get my hubby put to bed at night or make other arangements. I am paying 30 dollars an hour for this service it will go up to 90. It is labor standerds legislation. The large agency's have many clients to do so they go from place to place. My smaller agency only has us. So now I have that to deal with. They have just had a turn over of all new staff who are not used to my hubby's special needs and not adequately trained. R has been dropped twice and now they informed that the girls feel hubby would be better off staying at home instead of going out because his mobility has decreased lately. They all only have a couple of weeks some only worked a few shifts. How can they judge his mobility. They need to learn to connect with him. It is not easy strapping him into the van and they do not want do it. They suggest we should stay home more and they can play cards with him and I can go out alone. I am so mad. I think I should know if he is too tired. It is the staff that is tired. One of them has major mobility issues themselves. I think I am being dumped and now will need to find another way to get care. May have to hire my own staff again.Hope things look better in the morning.