More Hits!!

[imshakydad]

Dystonia! Anxiety! Acid Reflux! The Hits just keep on coming! More for parkinson's awareness month.

 

imshakydad.wordpress.com/20...

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Hi Shakydad!

Thank you for your Greatest Hits of PD!  I can certainly relate to these Hits! Looking forward to the next segment! 

Best,

PJ

[vhardiman]

Yes the killer acid reflux does get much of a mention. Anyone has remediesremedies,  considering we are not meant to have antacids within 3 hours of Siemens. 

[pen1]

Thank you so much for posting this. It's information like this that needs to be out there - especially during the supposed UK 'Parkinson's Awareness Week' (next week.) 

As usual - and I've been watching the April campaign for the 14 years since  my diagnosis -this year Parkinsons UK has not only failed to produce or disseminate any information which could actually improve the public's understanding of PD and its many and varied effects - physical, mental, motor, non motor that we all know about but seems to be a state secret . It has, yet again done nothing to publicly change the view of PD as simply a condition where old people shake. And it has managed, whilst completely failing in its educational role, to offend and patronise me and every one I know, with or without PD .  Being told to 'dye your hair PUK blue' or wear stupid  hats to 'celebrate' PD awareness week is  patronising, to put it at its mildest. Can we imagine being told to 'celebrate ' ovarian cancer awareness? Of course not - Cancer charities respect are are run by intelligent individuals sensitive to the feelings  of those people they are helping and respect their battle with appalling illness. We PWP don't appear to be worthy of such respect - I don't think I'm being hyper-sensitive to feel that 'Use Your Head' is possibly the worst yet of the 'awareness' week slogans PUK have dredged up over the years. I try to 'use my head' but unfortunately my brain inside it has gone rather drastically wrong.

The sad thing is that the  'Use Your Head' slogan could  have been used very effectively in a professionally run awareness campaign. ( I'm happy to explain how to the people at puk)  However, despite, to my certain knowledge, offers of help and advice from professional campaign managers  over the years , we yet again have a 'national awareness' campaign that will have absolutely no impact on the national ignorance about PD. And no one outside PD circles will even be aware it's happening. Next year let's hand it over to a bunch of sixth formers - I have no doubt at all they would produce something truly informative with real impact, relevance  and effectiveness.