Nothing to fear but fear itself... - Cure Parkinson's

Cure Parkinson's

26,583 membersβ€’27,899 posts

Nothing to fear but fear itself...

β€’32 Replies

I don't like heights, on top of the Empire State Building I clung to the centre 😟

I don't like snakes the thought of touching one makes me shudder.

I don't like dentist's drilling and tugging in my mouth, horrid.

But none of the above is a fear. My idea of fear is a paralysing state, where you lose rational thought and the sense of dread consumes you.

Parkinsons has the potential to drill fear deep down into the heart of you cloaking your soul with an inky blackness and resulting despair. Seeping slowly it creeps and over the years there is a growing poisonous stain. Hard to wash away.

I won't live in that dread. I won't allow that joyless state override all the good in my life. It can't consume my memories and I refuse to have a dark future.

Try as it might, and boy it tries and tests me, it won't win.

How can I be sure? How can I stand the relentless tiresome challenges it keeps throwing at me.

I have a series of strategies, I have coping mechanisms, I don't leave my happiness to chance. When it raises its ugly head I have to raise my bar. How high, as high as it takes.

It doesn't stand still, so neither can I. I don't have all the answers but I have enough.

Today I'm

Playing some loud music

Eating cake

Spend time with people I love

Laughing a lot

That's a high bar πŸ˜ƒπŸ°

32 Replies
β€’
12stargate profile image
12stargate

I love it Coleen!!πŸŽ‚πŸ°Enjoy that cake!!

I think I will find me some cake tooπŸŽ‚πŸ¨ And maybe some ice cream tooπŸ‘πŸ‘πŸ˜ŠπŸ˜ŽπŸ‘πŸ’•

β€’ in reply to12stargate

Ice cream πŸ˜ƒ Perfect

12stargate profile image
12stargateβ€’ in reply to

What's your favorite flavor ?

Mine is moose tracks 😎

β€’ in reply to12stargate

You got me! Never heard of it!

I make an amazing recipe ' brown bread ' ice cream it's to die for πŸ˜ƒ

12stargate profile image
12stargateβ€’ in reply to

Would you share the recipe?

evagabrielle12@gmail.com

β€’ in reply to12stargate

I'll email tomorrow πŸ˜ƒ

12stargate profile image
12stargateβ€’ in reply to

Thannks <3

β€’ in reply to12stargate

Sent

stevie3 profile image
stevie3

I'm sat in the car eating cheesecake. Because - why not? When I fill in my Parkinson's 100 day tracker tonight, under 'dietary choices' I will tick the 'mostly balanced' box!

12stargate profile image
12stargateβ€’ in reply tostevie3

Cheesecake Yum - yeah why not ?

What is a 100 day tracker

β€οΈπŸ‘πŸ’•

stevie3 profile image
stevie3β€’ in reply to12stargate

I saw a post about it here. It's an app for your phone which you download and you select some things to track everyday - like how long you excercised, how you slept, your mood, energy, diet, other stuff. You enter your meds as well. Then it stores your data and you can run reports. its quite interesting. Go to the ap store and look for uMotif but mane sure you get the 'Parkinson's 100' one. It's free.

stevie3 profile image
stevie3β€’ in reply tostevie3

myhealthapps.net/app/detail...

stevie3 profile image
stevie3

Although this may just be in the uk. I'm trialling it

12stargate profile image
12stargateβ€’ in reply tostevie3

I can't get in Steve; I can't get a code

stevie3 profile image
stevie3β€’ in reply to12stargate

Are you in the UK?

12stargate profile image
12stargateβ€’ in reply tostevie3

I am in Salt Lake, Utah

stevie3 profile image
stevie3β€’ in reply to12stargate

I think it's just being trialled here in the uk

moonel60 profile image
moonel60β€’ in reply tostevie3

Im in Australia and have the app on my mobile phone

Enidah profile image
Enidah

Ain't it the truth!? We sure need to live consciously and pay attention and stay on top of the dread. I need people now more than I ever have in my life and I always need something to look forward to. Right now I am planning on my oldest daughter's wedding and traveling across the country and I'm pretty darned excited about it.

Music is a great help and gets me moving, also.

laglag profile image
laglag

Love your post!

Also, speaking of favorite ice cream flavors....

#1) Spumoni

#2) Moose Tracks

#3) Chocolate Almond

β€’ in reply tolaglag

Never had any of those 😬

honeycombe3 profile image
honeycombe3

Hi Colleen,

Please keep raising the bar - just look how many positive responses this as generated.I too have strategies to help me through the dark times but just at the moment they don't seem to be working their usual magic so learning lots of new ice cream flavours to try has helped lift my spirits. Thanks, Angela.

β€’ in reply tohoneycombe3

Keep waving your wand πŸ˜ƒ

lark13 profile image
lark13

I πŸ’— The positivity here!!! Thanks to all!

hopedope profile image
hopedope

I like your posts so much. So far I haven't had any dark days. But after reading through these replies and learning your name is Colleen I googled your full name and found your you tube post. It was wonderful. I try to plan ahead too and prepare for the dark days that will come. I have googled Brown Bread Ice Cream just now too and will try one that is on Epicurious. Do you use whole wheat bread in yours? It sounds like a great way to add some fiber to dessert!

β€’ in reply tohopedope

That's so very kind of you. I try quietly to do my bit. If it reaches just one person that makes me happy. Today it was you.

Thank you. I will post the recipe.

Court profile image
Court

Hi Colleen

I am late reading the posts today. Not one of my better days. My husband and I were talking about brown bread ice cream just the other day and he was saying he could not believe anyone made it and liked it and there it was in your latest message. Would love the recipe, please.

As usual you have penned another great article and I am sure a lot of people, me included, will pick ourselves up, dust ourselves down and ......you know the rest.

Please continue posting. I always look to see if you have worked your magic.

Sue

GrammyC profile image
GrammyC

Thank you so much for writing this uplifting post. It is helping me start the week off in a positive light!

HeartSong profile image
HeartSong

Colleen, I admire your spunk! For me, I know I can't keep up enough of my on spunk to keep depression and despair at bay forever. But, my faith in God and studying the Bible everyday gets me out of a funky low every time. In the Bible, Jesus is said to have healed many people who were sick, and we have no record of him ever saying "no" when asked to heal. So, I ask him to heal me and make me whole. The Bible says to "ask and keep on asking". So, until I'm healed, I will ask and keep on asking. After I'm healed, I'll say thank you, thank you, thank you, thank you, thank you! (Some may think I'm audacious for expecting to be healed when the medical community says they know of no cure. To that I say, "Think big.")

β€’ in reply toHeartSong

It doesn't matter what you believe in as long as you believe in something

moonel60 profile image
moonel60

Hey good on you... Glass half full kind of person like me!! Yes theres always some one else worse of than me!! That kind of attitude has to be a huge , HUGE, help in gaining better  life! Good on you. 😎

AmmieM profile image
AmmieM

Very inspirational

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