Zzzzzzzzzzz....

For 11 years I coped with chronic insomnia, I've been DX 12 years.

Everyone told me PD disrupts your sleep pattern so I accepted it. I adjusted to 3 hours a night, filling my time positively and usefully. I just have long days ! I'd joke!

I never took sleeping pills. In my opinion it's the wrong kind of sleep.

Plus who wants another drug we all rattle as it is.

3 months ago I had reason to change my drugs. It meant cutting one out completely. After 4 weeks I suddenly noticed my sleep improving, I began to dream, amazing. Now I'm 8 weeks in and have a near normal sleep pattern.

I no longer look like a ghost!

This is just a personal account, I have no medical qualifications.

I just thought it useful to share !

C HH

Me with sleep!

[Mikehere]

That is great. I have the same sleep problem and wonder what drug did this for you.

[Hidden in reply to Mikehere]

I stopped Mirapexin

[laglag]

What med did you cut & what are you still on? Thanks!

[Hidden in reply to laglag]

I stopped Mirapexin I'm still on Simnet

[Pete-1 in reply to Hidden]

There's a suprise. Any unpleasent withdrawal symptoms? When I stopped (slowly) the withdrawal was extremely unpleasent.

TTFN agen

[Hidden in reply to Pete-1]

It wasn't easy at all, hence my cautiousness

But well worth it

again !

[Hidden]

what was the change in drugs that you feel has caused the change in your sleep? Did you have insomnia or Restless Leg Syndrome?

[Hidden in reply to Hidden]

I stopped Mirapexin

No, no restless legs

[Hidden in reply to Hidden]

Its called Mirapex in Canada and I am taking small dose for RLS as well as the Sinemet. I've had numerous unpleasant side effects but haven't been able yet to stop Mirapex. What side effects did you experience?

[Hidden in reply to Hidden]

Horrendous ... Hallucinations, compulsive spending, paranoia, low self esteem, suicidal..... The list goes on...

All completely gone now

Slow recovery but 1000 times better

[Hidden in reply to Hidden]

I wud be interested to know why you were prescribed Mirapex in the first place, and how long you took it. Thank you for being open to such discussion.

[Hidden in reply to Hidden]

Mirapex works

The rest is a long story

[Hidden in reply to Hidden]

Ps honesty is the only way we can all understand and help ourselves improve

[Pete-1 in reply to Hidden]

Well done.

[cabbagecottage]

I found once I stopped giving John the neupro patch his choking at night eased .

[Hidden]

I stopped Mirapexin

But please do NOT make any changes to your medication without consulting your Neuro team. This drug does greatly improved motor symptoms but it couldn't tolerate it anymore, I believe it's use should be very strictly controlled.

It does not necessarily follow that sleep improvement is a given if you remove it, but it is what happened in my case.

For me the benefits of not taking it significantly and overwhelmingly now out weight its effect.

CHH

[Pete-1]

Hi Colleen,

Just wondered what the drug or drug type you have reduced or stopped taking is ?

Thanks TTFN

[Hidden in reply to Pete-1]

Mirapexin

[Pete-1]

Thank you.

[Tato]

Have you tried taking Melatonin? It's a natural hormone produce by the body for sleeping. I take between 1 to 3 mg when I have had 1 or 2 consecutive bad night. It's OTC and no side effects, take 1 hour before intended sleep. Can get up to bathroom and immediately go back to sleep m

[Hidden in reply to Tato]

Thank you so kindly for thinking of me but I do t need it. my sleep has come back, hurrah

[Beckey in reply to Tato]

Say, does it help restless leg syndrome?

[Beckey]

That is so interesting! Here's hoping it lasts and that you get many nights of deep, uninterrupted sleep.

[Hidden in reply to Beckey]

[racerCP]

What are you taking that gives you near-normal sleep. I would almost do anything for near-normal sleep.

[Hidden in reply to racerCP]

It's not what I am taking it's what I no longer take. Since I stopped one drug my sleep has slowly returned