Swollen ankles???

[Peaches]

Does anyone out there suffer from swollen ankles? I am wondering if that is just another part of PD or if it is caused by something else.?

[Pattijoy]

Hi, Peaches! Sometimes edema can be caused by meds! For me, it was from Amantadine! I couldn't even put on flip flops. Chat with your Doc and take care!

[satwar]

I also found this problem when I started medications. The simplest remedy for me was to walk daily.

[Balderdash]

Its a side effect of meds that usually goes away in my experience.

In my opinion lack of sleep is the biggest cause of swelling(you start the day with it).

Medication appears to be less effective when swelling features.Some women find meds dont work as well pre mentstrually,fluid retention being the problem and for which treatment is available.

I think oedema is a whole subject area worthy of researching .

[charsie in reply to Balderdash]

Attached is my e-mail where you can receive my "PD Symptoms" of 100+ items. Ankle & Leg Swelling are definitely symptoms. E-mail: [e-mail] In the subject area: PD Symptoms. Hope this helps...

[Melodysam1890]

I am just experiencing this swelling of the ankles .. I noticed the discoloration around my ankles first that began on my arms and my Neurologist explained was from Amantadine (it sports a long & tedious medical name). .. I have noticed the swelling has been more profound when regular exercise and sleep are lessened.

[Hidden]

I have had swollen knees but I find a good rubbing of ibuprofen gel helps. I never know if it is the PD the drugs the weather or something else. I reckon when getting old we have all sorts of problems to contend with .

Once the swelling goes down there will only be another ache or pain next week in another place.

It is like having a Birthday with surprises on a regular basis.

Doctors aren't really much help, best to just get on with it.

[Peaches]

Thank you for your replies. You are so right....the Drs. never say that the symptoms are caused by PD. I guess if they are not concerned about it I should not be either. It's so good to be able to hear from all of the folks in this group who have actually gone through it. In my opinion, the primary physicians are not very knowledgeable about PD . Thanks for your comments.

[JohnPepper in reply to Peaches]

Hi Peaches. I see that some people blame the medication, but I do not take any medication anymore, so it can't be my problem. I thought I would just let you know this.

Kind regards

John

[PatV]

what meds are you taking? Requip made my ankle and feet swell.

[JohnPepper]

Hi Peaches. Yes! I have had swollen ankles for many years, but I did not think it had anything to do with Pd. I assumed it was water retention and took a diuretic, on prescription. Let me know if you learn anything associating it with Pd.

Jojn

[Hidden]

Swollen ankles could be caused by a few things. In my case it's because I have a particularly slow heart beat (49 bpm) and the blood is not going round fast enough. I'm 73 and it's been like that for years, even before I was diagnosed with PD. I'm not sure how to deal with it but I'm going to get a piece off furniture to put my feet up in the evenings and of course keep walking.

[charsie in reply to Hidden]

Attached is my e-mail where you can receive my "PD Symptoms" of 100+ items. Ankle & Leg Swelling are definitely symptoms. E-mail: [e-mail] In the subject area: PD Symptoms. Hope this helps...

[Peaches]

Thanks for these comments. I take Carbidopa/Levo and Pramipexole for the PD and also meds for high blood pressure and high cholesterol. I also have A-fib so I take drugs to slow my heart rhythm along with Warafin for blood thinner. I wonder if that's the cause, as my heart rate gets below 50 all the time. Very interesting.

[Judy-10]

My dad had a terribly swollen ankle (and lower leg). If was a blood clot. Please make sure you check with your doctor!

[charsie in reply to Judy-10]

Attached is my e-mail where you can receive my "PD Symptoms" of 100+ items. Ankle & Leg Swelling are definitely symptoms. E-mail: [e-mail] In the subject area: PD Symptoms. Hope this helps...

[Peaches]

Thanks. I have had an ultra sound to rule that out. No blood clots.

[charsie]

Attached is my e-mail where you can receive my "PD Symptoms" of 100+ items. Ankle & Leg Swelling are definitely symptoms. E-mail: [e-mail] In the subject area: PD Symptoms. Hope this helps...

[Belle21William]

Hi Peaches. I found my swollen feet, ankles and legs very distressing, particularly my left side, my worst affected side. after numerous consultations with the medics I decided to very carefully and slowly reduce my pramipexole meds., a decision I reached entirely on my own. Gradually, when I was completely off Pramipexole, my feet, ankles and legs have returned to normal. I have also noticed my eating is more controlled and for the first time I am slowly losing the excess wait I gained whilst on this drug. Granted, my tremor is much more agressive and I am feeling a return of my motor symptoms, slowness, rigidity etc. My Neurologist advised me to go onto Sinemet 3 times a day, increasing the dosage, slowly, over weeks, since July. So far, it has not proved to be hugely effective, but not seeing Neuro again till late September, so will persevere. I am open minded and would prefer to use alternatives to the drugs available to us because the side effects are numerous and often, in my case, outweigh the benefits. I am finding "Parkinson's" an enormous daily challenge and hope to never let it get the better of me. We are all struggling to keep one step ahead of this dreadful disease...sending positive thoughts and good wishes.

[Peaches in reply to Belle21William]

Thanks for the info. Sounds like you are having a time of it. I am not brave enough to stop any meds but I hate taking so many too. Guess we all just have to hang in there and deal with it in our own way. Without the pramipexole I always felt life I was being pulled forward and up onto my toes. Bet there a millions of different stories out there. Thanks for sharing yours. Peaches

[pedserv]

I had chronic swollen ankles, and I associated them with meds -- azilect and amantadine. However my vascular specialist corrected 90% of the problem doing Ultra-high frequency ablation of 3 perforated veinous valves in my legs. I now wear 20-30mmHg knee high support hose and have minimal swelling. I try to walk at least every other day. I recently added Requip. Initially swelling increased but has resolved back to normal.

[Peaches]

Very interesting. Thanks for sharing. Getting old is such fun and getting old with P D is even MORE fun, right?