Has anyone with pd tried or heard of low ... - Cure Parkinson's

Cure Parkinson's

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Has anyone with pd tried or heard of low dose naltrexone being used successfully with pd symptoms?

Park4me profile image
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Park4me profile image
Park4me
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12 Replies
Cinderella63 profile image
Cinderella63

Hello Park4me yes I have heard of Ldn and I have read many letters that.people have sent in saying how it was benefiting them I am about to see my specialist in a few weeks and am definitely going to ask him to put me on it

ned-kelly profile image
ned-kelly

According to drugs.com a lot of side effects possible, suggest you keep an accurate diary .

answerseeker profile image
answerseeker in reply to ned-kelly

The only side effect my husband had with this was particularly vivid and unusual dreams for a night or two. Anytime he skips a day or two due to running out or just forgetting, when he restarts, this sometimes occurs again. Dreams were not frightening so he doesn't mind.

cabbagecottage profile image
cabbagecottage

That seems to be the case in all the medications !

movinngroovin profile image
movinngroovin

Yes - I am on it - 4.5 mgm-it holds the disease abay...provides the brain with enndorphins

soccertese profile image
soccertese

i tried it for 2 weeks, got my neuro to write an RX and filled it at a compounding pharmacy. took daily for 2 weeks and stopped due to vivid dreams, just too real, i woke up in the morning tired.

silvestrov profile image
silvestrov in reply to soccertese

It is possible the dose was too high. Perhaps half the dose you were taking would help you. Not everyone responds to drugs at the same dosage.

silvestrov profile image
silvestrov

Here is an audio about a PD patient who recovered using LDN (along with vitamin d, b12, exercise...):

blogtalkradio.com/parkinson...

Park4me profile image
Park4me in reply to silvestrov

Thanks SOOO much, I am convinced and plan on demanding this drug from my doctor! I do not want to fill my body with "band aid" drugs!

silvestrov profile image
silvestrov in reply to Park4me

You obviously listened to audio and try to gather as much information about LDN to give to your doctor. LDN has been used for Crohn's, MS, AIDS, Lyme disease....

jebbers profile image
jebbers

yes, it has helped me alot. I highly recommend it. I feel it has slowed the progression and lessened the symptoms. I went off it for awhile and started going downhill fast.

answerseeker profile image
answerseeker

My husband started on LDN probably about 4 years ago. One integrative doctor I consulted with over the phone said they love it in his clinic but it was not the miracle we were looking for. He is still taking it but it is hard to tell that it has helped. Still we hesitate to stop because, although he has had progression from the right to left side of his body and sometimes tremor in the legs as well, for his almost 11 years since diagnosis and no Parkinson's meds at this point, he is overall doing well. He is still working at 77 and although a lot slower, gets done what he needs to and is still one terrific guy!

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