Why is it that doctors completely ignore arthritic pain in my hand and wrist. It has restricted my using it. It's on my tremor side and because of lack of use the arm muscles have wasted. It's my.right hand so I cannot write anymore which is so restricting. Plus holding a pen is agonising. I am so sick of it.
I have bought hand and wrist splints to help with the pain and restrict movement. I sleep some nights with a hot water bottle on my hand and wrist.
I have as well as PD, an over active thyroid. I am not on medication for PD just Carbimazole from Endocronologist. My decision.
Yes, my pain controlled by sinemet and i can write perfectly when the pills are working.
Thank you for your reply.I did have this years before PD. So is there a connection?
Just get a bit fed up of being treated like I don't have a brain by Doctors. The last geriatrician I saw put is hand up in front of my face to stop me talking when I tried to speak to him. I was then dismissed.
The Endocrinologist was the same, he was more into looking at his computer screen and phoning people than communicating with me.
You describe what are often PD symptoms and they are on your PD affected side. While joint pain can be arthritis it is also common in PD and trouble writing is classic Parkinsons.
You had it years before PD, well we usually have symptoms 5 years and more before we actually know we have PD. PD develops slowly, my aching wrist was an early sign. I don't have it now I am on treatment. I also had shoulder pain 8 years before diagnosis and that has gone with sinemet treatment.
If you have arthritis you should be seeing a Rheumotologist for that and it should be treated separately from you PD. As for the Drs. you describe, is there any way you can change your doctors? I would not for one moment put up with that kind of behavior in a physician.
So many of my Parkinson's friends have what feels like arthritis on their affected side. One has even had a major operation on her hand only to be diagnosed with Parkinson's a short while later and get relief through the meds.
Why not try the PD meds and see what they can do? I don't know your reasons for not taking them but it does seem a way of proving the you have arthritis or not. Are you under a specialist neuro?
my husband wasn't diagnosed with Parkinsins until he was seventy. We have been married for 56 years and he had very painlful shoulder when I first met him . Since taking Sinemet he has not had any pain in his shoulder .
His handwriting has aways very small .
He was always had strange feeling in his hands but thought it was because he wrote so much . That was his job .
Now he has had great difficulty feeding him self turning his hand wrist etc . His toes stick up Na d become distorted . I believe this is Dystonia ?
Thank you for all you replies.
Unfortunately I was diagnosed with an overactive thyroid in November 2013. Discovered when I went to hospital after a bad reaction to an antibiotic.
I had lost some weight but put that down to PD. Otherwise I was not to bad. Since November and on the thyroid medication I have felt so much worse. At present I am trying to get over a virus and feeling very rough. Apparently hyperthyroid can be an autoimmune problem.
I am beginning to get very disheartened and my usual get up and go personality is struggling. :-(. But thanks everyone.
Don't give up. My PD appeared after thyroidectomy for thyroid cancer. As well as above suggestions, find a physical therapist or occupational therapist or a fun exercise class for pwp's. Makes my life livable and I have fun again.
I have rheumatoid arthritis as well as PD.I am on main line drugs for rheumatoid and I am in pain all the time.I take co dydramol for pain and find it takes the edge of it
Thank you everyone. It's so nice and reassuring to hear your comforting words. It's difficult living alone and having no one to share or discuss your worries with. I hate to bother my children to much, or worry them.
i have started getting joint pain in my fingers whilst on my right side i also have pain in my elbow joint. I am finding it difficult to carry on normally but i am still trying to do everything. I will be speaking to my consultant regarding Sinamet when i see her next as i have read some positive replies from other members
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