cell replacement progress has I THINK .GONE ON BACK BURNER.bamboozled by diskinesea unreliable results, EXPLANATIONS ,researchers have dreamt up are over comlicated and guesswork...........scotty says........ye canna change the laws o physics captain. unless old cells are removed whacking in replacements is never going to last ,cleaning the site is fundamental. in simple terms ,.remove the old stikkin plaster before a new one replaces it.
the bodies own system cleaners........ macrophages may be deployable, or really exciting news A LASER TO REMOVE CLUMPS in development at CHALMERS UNIVERSITY SWEDEN ...talks of a CURE YABADABADOO....parky no more .
new line in proclaimers song letter from America......and I will one day be singin it
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No offence Professor but how informed are you on Cell Replacement problems. I am keeping as close as I can to the Trans Euro Trial run by Roger Barker - I also have a friend participating (I was told I was too old - me a "young" 69 who has always exercised - especially since my diagnosis 11 years ago - and have recently taken up boxing training?) and would be very disappointed if things are as you say
Regarding the Swedish / Polish breakthrough, I thought it sounded wonderful but I don't know how far away we are from benefitting from it. I have some feelers out and will report back anything I find out
Why are we so anxious to spend fortunes on questionable cures, when we know how to reverse the symptoms of Parkinson's by walking three times a week> Yes! And it costs nothing! Are we all so lazy that we can't even help ourselves to overcome a serious life-altering condition like Pd?
Would that this were so! While it's true pwp's CAN walk and even run, and keep the poor deluded muscles deprived of dopamine working, walking won't bring back the dead and dying brain cells!
Hi PatV. You are wrong! The Glial cells are not dead. They have been stopped from producing dopamine, but they are not dead. The GDNF (Glial Derived Neurotrophic Factor), which is a Growth Factor, restores the Glial cells, so that they start producing dopamine again. So, walking does reverse the Pd! I refer to the report by Dr Beth Fisher, delivered at the 2006 1st World Patrkinson's Congress held in Washington DC>
Hi John, I don't think it's rude or insensitive to ask question's, or to get answers - it's part of what makes this forum a good place for information.
At the moment my lack of mobility I believe is down to restrictions on my breathing & the band I feel around my diaphram - which also effects my amount of speaking. So without adequate breath - walking & any type of oxygen needed activity (including sitting at the computer) gives me extreme pain in my diaphfram, extreme shakes, & I can feel my blood pressure going up. Because of weakness I do slump a lot too. I have read that PD can cause these symptons.
Also in the past I did have Asthma - which I no longer have. So 11 months ago I stopped using my steroid inhaler because I didn't need it. So my lungs will not be the best of lungs.
One last thing - I used to be an artist who painted large abstract paintings - but I haven't done much artwork for about 4 years. But since an aborted holiday to Cornwall - due to being admitted to hospital in extreme pain. I have discovered that I can do smaller artwork while being in bed. The reason I've added this little story is - be extremely carefull of what you wish for. I used to wish that I could have lots of free time to do my art - & I should also have wished for good health to do it with.
Any thoughts if symptons are PD or otherwise - I would be interested to hear.
Hi phoenixalight. I am not a doctor, only a Pd patient! You don't sound in good shape, but I am an optimist. The more exercise you do, the healthier you get. One minute of exercise is better than none at all. We all have to have a reason to live. What is yours?
What does your doctor tell you about your health? You sound as if you might have emphysemia, is that possible? Many of the other symptoms could be Pd related.
Hi John, Maybe I have given up on living - what a strange idea for me. Not all things are physical, some are philosophical. And having this conversation has made me realize that I am preparing to die not to live. I am not preparing to die in a negative sense - but in the deeper understanding and wonder that is this world. I am surrounding myself with music, books, poetry and doing new small art works, I have a lovely loving family & a special friend. Although I am becoming insular, it is making time for what I haven't had much time for in the past.
I am 79, but that's no excuse for giving up, and I haven't really given up. I do keep on trying to maintain as much of my physical health as I can, but not doing any specific exercising as that has gone on my back burner! And I now need to rethink what I can do for myself (including not slumping while I'm typing this)
Thanks John about reminding me - about the importance of exercise. It's amazing I really feel that I want to do it - Wow
that's an unexpected result.
You asked about 'My reason for living?' My answer - to live in wonder in our wonderful world.
Well, I've just done some walking on the spot for 2 mins - swinging my arms - and looking in the bathroom mirror - and saying out loud, and smiling 'My body is important to me - my body is important to me. I must have forgotten that 'to have a mind - you do need a body that can function as well as you can make it! What a revelation - sometimes I wonder - how I can just loose the plot?
Hi pheonixalive. You and I are the same age. I am also in wonder of the world we see around us. Here I am, thinking of climbing up the back of Table Mountain, in Cape Town, South Afdrica, and you are thinking about the same wonderful world, somewhere else in this same world. You are definitely not thinking about dying, because you are talking about living! Life is not a RIGHT it is a privilege! We have to work hard to enjoy it, especially at our age. Keep on making plans, especially to make your body as healthy as you can by USING IT, before the good Lord takes it away from you.
Hi John, Have a lovely day youself. Did a bit of exercising again today, so you keep plugging on about it.
I did a beautiful ( I love the art I do - & not afraid to say so!) piece of artwork. I have recently bought the most amazing absrtact advanced drawing book I've ever had - I do semi abstract stuff.
And recently listening to some beautiful music I found myself thinking & actually my drawing hand was moving to the music - & wondering how could I draw the sound of music. Well yesterday I got my drawing pad, pencils, colouring pens out - put my music on Bellini/Norma Aria & Verdi's/Aida & I drew the music. It was really exciting - almost like conducting an orchestra. I had a tangle of very jaggrd lines & where the singers went into top notes very rounded shapes. I then assessed the lines & I work from there. The finished drawing didn't look operatic - more like a firework display. But when I do another music piece, I will see if I can keep a scene in my head from the music. I did a big Jimi Hendrix painting once - whilst listening to his amazing music.
Well as you can see I definately am feeling much more myself, thank goodness. And thanks to John for his excercise and walking mantra!
For other people reading this blogg, if you haven't tried art - give it a go, let your feelings guide you. My stuff looks like scribbles to some people - to some it looks exciting. It certainly does help me to forget my cares and woes. And you can start off on a tiny budget. Crikey I have gone on a bit!!!!
Hi Helen. i also do a bit of painting in oils. My work is a lot less exciting than yours. I supposedly photograph in oil. My paintings look like the original photograph, only I leave out the things I don't want and put in other things that I do want. I suppose cameras can do that these days as well. My art encourages me to control my hand movements, which are often very shaky. It is amazing how I can draw or paint a straight line, which is almost impossible when I don't focus hard on what I am doing.
I share your view of Bellini and Verdi, but who is this Hendrix? I am not a lover of modern 'Music'. It is just a lot of unpleasant noise to me. Sorry if that upsets you.
Hi John, I lost my started previous post, probably just as well - as I was again singing my own art praises - but I do get excited about it.
Jimmi Hendrix is/was one of the worlds most famous rock? guitarists. He could make his guitar squeal, wail, reverberate, prolong the noise by holding it in front of the speakers - an amazing noise.he died young of an overdose.
Oils are a lovely medium, but I did hate the smell of cleaning solvents & the time they took to dry. So you are a perfectionist - camera perfect - I would have guessed that!
On a PD note - Myself & one of my daughters have an appointment at my surgery tomorrow, as we are not happy about the lack of care I have been getting there. I feel that things have been allowed to worsen by not being investigated, and being put down to PD. I feel that my emergency admittance into hospital could have been avoided. As the problem is clearing up now with steroids. I know steroids have a bad press - but if it cures - then I think it makes sense to use it in a regulated way. At the moment I am slowly reducing my steroid use as suggested by new rheumatolgy consultant I saw while in hospital.
Have a good day. I noticed a post from you regarding your fitness over !0? years with PD, which after my lunch I shall reread, or I might read a Terry Pratchett book instead - no contest - it's the Terry Pratchet book.
Hi Helen. No disrespect but the noise of a screeching guitar must be THE MOST HORRIBLE NOISE I can imagine! Each to his/her own, they say. AS lng as you enjoy it that is fine by me.
I hope your health comes right with whatever you need to use.
Don't forget the exercise!
Kind regards
John
Ps, Don't forget the exercise. Now you can go back to Pratchet.
Hi John. I am so cross - I have just come back from the surgery, which was for a special long session because of complaints I had with the poor treatment I was getting there. My daughter came with me as I can not tackle the indifference & the opt out of treating me because 'they don't know enough about PD.'
My daughter was accused of shouting - which she wasn't - she does have a very loud voice (she could take paint of walls - and sometimes she is so loud that it is embarrassing) but she wasn't shouting, and she was strained also - trying to get a decent sort of help for me.
I couldn't believe It when the Dr suggested 'That if I didn't like the surgery - perhaps I should try another surgery.' & I have been with that surgery for 50 years, and there I was in extreme need of good, kind doctoring. And going to another surgery means a longer more stressfull journey. Really they would rather offload me than try and do better themselves.
Then my present prescription for Pregabalin of 1 x 75mg twice a day - but I have only taken one a day - I am adverse to strong medication). The Dr has upped the dose to 150mg twice a day, and then said if that doesn't work, they can up the dose even more! And whats made me even more angry - is that - not once during the 45min time we had with the Dr was I asked 'How was I?, and I was having the most awful shakes & could hardly talk.
How do you manage John not having to take strong medication with its bad side effects? I know you swear by excercise & walking and that works for you, I wish it could for me too.
Anyway John I am going to put this post out on a general post - as I am absolutely appalled by this situation. John I would like your frank views - if you think I am being unreasonable about what I want.
Hi Pheonixalight. I sympathise with you. I do not have a hight opinion of the way that neurologists treat Pd. You don't say whether your doctor is a neurologist or not. Gp's can not be expected to know much about Pd, so can be excused for that. We have to go to neurologists for help. The problem, as you say, is that they don't ask you how you are, they just tell you to take medication, and if it doesn;t work they tell you to take more. My feelings on that score are that if medication does not work, stop taking it! I can understand that there can be quite a problem finding the right medication that works for you. It seems to be trial and error, which it should not be. I have never heard of the medication you were taking.
I have said elsewhere that I knew one man who refused to take Pd medication because it was so expensive and was just a rip-off. He was in much better shape than any of the others in our support group, even though he had had Pd for a long time. He was just slow and had to be helped to walk. The others were reasonably fine, when the medication was working ("ON") but when it was not ("OFF") they were far worse than he was.
I only took sinemet for 3 months, and because it did nothing for me, I stopped taking it. The irony of it was that when my neurologist told me to take sinemet I was already doing so well that none of my friends could tell that I still had Pd. Why did he need to prescribe more medication? In fairness, I have been told that after 8 or 9 years, which it was at that time, I would need levodopa to help me cope with my Pd. As he never asked me how I was doing, he did not notice that I was looking and feeling a lot better. He did his usual tests of reflexes and balance etc, but never asked how I was doing or what I was doing. At that time, I was walking very well and I was as fit as a fiddle.
The medical profession here in South Africa responded very negatively to my book and told everybody that I did not have Pd and they should not listen to what I was telling them in my book.
I wonder who diagnosed me and prescribed medication for me if it wasn't a neurologist? I wonder what would have happened to me, if I did not have Pd - taking an MAO-b inhibitor for 10 years? MAO-b inhibitors stop the breakdown of dopamine in the brain, which means that I would have had such a large supply of dopamine in my brain, which is the cause of dyskinesia. I did not have dyskinesia, so they were talking the biggest load of rubbish. They don't appear to want us to get better!
You must remember that no Pd medication has any effect on the progression of Pd. They only mask some of the symptoms. The Pd continues to get worse, all the time. In my case, my Pd is a great deal better than it was when I was diagnosed and what it was two years after diagnosis. Read my book - Reverse Parkinson's Disease or visit my website - www,reverseparkinsons.net.
Hi John, Thank you VERY much for your reply, I am even crosser this morning over yesterdays trial at the surgery. You mentioned how you try to avoid stress as this is unhelpfull to your state of health and wellbeing.
I hadn't realized what a trigger stress is to me, because while in the Dr's, and it seemed what could and should have been a mediation getting together - turned into a mean sneaky battle of who had the strongest will or authority out of the Dr or my daughter!
I couldn't believe that the pain which got me into hospital came back immediately, while I was sitting there, and as I now type is in my neck and shoulder as well.
I absolutely hate feeling helpless, it goes against my nature. I feel I should ring the Surgery Practice Manager & complain about being told "that if I didn't like the surgery, why didn' I go elsewhere?'
But I know that if I keep this (my anger up) I will be increasing my stress levels which only does great harm to me. So you know what I am going to do (and I cann't believe that I am) is - that I am going to let it be.
I'm going to go out with my husband, potter round, do a bit of Xmas shopping, maybe have a tea out, I don't drink coffee as I use homeopathic remedies (coffee negates there effectiveness)
Marvellous sunrise this morning John, the world in it's supreme majestic awesomeness.
I will look at your book and your site - & I would like to say how much you have helped me - you have helped me settle. A strange word 'settle' a kind word 'come to rest' & for me 'to come to rest' is like being in my right and true place. Helen
Hi John. Me again my second post of the morning. But if I have things I want to say, it is better for me to get them out, than feel that I cann't speak to anyone in the world.
Now this one is to tell you, my first post was to really express my anger & i hadn't read the extent of your post - which I've now done.
My anger is gone and instead I want to help myself. Your story has inspired me, and I have started walking up and down my hall, and not to shuffily either. And I am going out today (which I haven't done for ages) so walking involved, and I'll do my best to walk properly. So my walking today will be shopping.
I am going to set myself a target to walk to our postbox and back for a week. and then I'll see if I can increase the distance.
Why don't we have an online walking post, posting our targets and if/or don't we do it?
If I can get myself out of feeling ill & helpless what a joy that would be.
Hi Helen. I am a real pain in the ass. Please don't do hard walking every day! Your muscles need a full day to recover. I am impressed with your handling of the doctor and your decision to walk away from it. Your health is more important than his behaviour.
I would be very willing to take part in a walking blog or whatever you call it. Just let me know how to go about it.
Hi John.Thanks for return post - and you are not 'A real pain in the ass' & I really deeply appreciate your input. I didn't walk hard yesterday, but I did walk. I even walked on my own - but not very far to a neighbours - for afternoon tea. But thank you for the warning about 'muscle recovery time' I am inclined to overdo things when I feel I can. But the great thing for me at this moment - is - feeling that I Might be able to start getting back my body powers.
Regarding the 'walking Blogg' I will be asking Bob - who I have seen on Health Concerns site a lot, and who seems to be another valued imputer - for his and other interested people on their opinions on this.
The new medication I am on is Lyrica Pregabalin & going from a 75mg a day to 150mg a day yesterday was interesting! I had serious double vision - to having at middle distance 6ft gaps between figures - looking at the road ahead traffic was sureal - I couldn't decipher where the edges of the cars were & the cars were merging, fortunately I wasn't driving. My inhibitions were fairly seriously compromised! I overspent on Xmas presents (but really enjoyed doing so) went out to tea, and told my neighbours/ friends things maybe I should have kept to myself. Couldn't stop talking all day. Was really charming & sweet to my husband. Felt full of life - but very 'up in the air' & I was stumbling & unsteady on my feet. Well I remember all that sort of behaviour from my drinking days - well behind me now, thank goodness. However - as a medication on the lower dose and with a dose of steroid treatment it did get me out of the excruciating pain I was in & couldn't have lived with. But for me - I do think I will have to be very carefull with this very powerfull medication. Also John I am awake & posting this at 2am in the morning!! I've also tidied kitchen, stacked DW, put a load of laundry on to wash.
Also for the localised nerve pain in my hand & foot which at the moment is much reduced, but my hand can still keep me awake at nights, I was given by the Dr a Gel called Frax to rub on - up to 3 times a day, this does help a bit.
Well I know that I am going on quite a bit - because it helps me get things clear in my head - and if it's of any interest to others - well & good.
Hi Helen. You really sound in a bad way. If the medication did that to me, I would stop it right off! I certainly would not increase the dosage. I am not a doctor, so don't listen to what I say.
Hi John. My other daughter also is horrified & said the same thing as you. But I have to tell you this John - this drug is quite addictive and I do know about addictions.
Right - decision time again for me! Seems to be happening quite a lot to me recently. And I can feel the hesitation as I am now about to commit to stop taking it - & I realize I am already addicted to it - even only after a short period. And I know that I do like the feelings it gives me - but I do already have very bad side effects. I am worried about the bad pains coming back - but if they do - I will have to redeal with it. Decision made I will over the next 2 weeks immediatly reduce back to the 75mg, taking 1 every other day and then stop taking it - as it does say don't stop suddenly. This decision is entirely my own decision on my own experience. WOW
Bless you John - you saying 'Endure the pain and know that I will come out of it better off!' gave me such an energy charge - like a knight ready for battle. I'm ready. Helen
Well done Helen! Just remember that when you are feeling really bad, your family and your friends will be proud of you for being so strong and determined!
Thank you John - I want to get a punchbag - I really fancy it, got the idea from one of the posts.
Don't things work in mysterious ways? During last week I wrote a (sort of poem) on addiction? For why I don't know - then I chose a photo of me say at 9/10 years old & thought how would a sweet look alike of Shirley Temple (me) look like - say when in my middle 40's had become an addict (drink) and I started to draw it. And there I was - unknown to me doing this drawing - as I was becoming strongly addicted to one of my medications!!! The drawing of me is so poignant & so full of sadness that I felt so sorry that I had caused me so much grief - & I do believe my subconscious was trying to warn me, amazing.
John if my continual posts to you get wearisome - ignore them!!!
john ,you are strong in mind and have achieved much your enthusiasm is self established, what you achieved may not be possible for all,the loss of dopamine would be rreinsttated if the cells can be cleaned off protein
chokin,
GDNF.DOES WORK, BUT PERHAP ONLY FOR A WHILE, a bucket with a hole holds water, but it has to continually be topped up,
THE BUCKET IS NOT FIXED
A NEW SWEDISH LASER PROCEDURE CAN IDENTIFY AND REMOVE THE PROTEIN CLUMPS.then maybe the bucket can fill itself..THE CHALMERS UNIVERSITY SWEDEN
Hi professor. Is this a tried and tested procedure or is it still in the testing stage? I am so wary of anything interfering in my brain, unless it is the result of what I am doing. Call me old-fashioned!
I've been noting your advocacy of exercise but I didn't realise it was specifically about walking. Do you think there is evidence that cycling on an exercise bike has the same effect? Where can we read the report by Dr. Fisher?
Hi Joanne_Joyce. First of all your question about the exercise bicycle. Let me first stress that I am not a medically trained person. I am a Pd patient. I did a lot of work on an exercise bicycle for several years before I was diagnosed and for two years after. That was for 30 minutes each session and anything from 3 to 6 sessions a week. In addition to that I did up to 30 minutes on a treadmill and 30 minutes on a step-climbing machine, not every session but as and when machines were available. None of that helped to reverse my Pd. During the first 2 years, after diagnosis I was taking an MAO-b inhibitor, which also did not help me to reverse my Pd. At the end of that 2 year period, I gave up doing all the exercise and because my neurologist had told me that I would get to the stage that I was so rigid that i would become bed-ridden, I thought why am I fighting it, give in and let it happen!
But then my late wife begged me not to stop exercising but to join her walking group, because she had been doing it for three years and she had lost 14 kilograms in weight and she had never felt so healthy in her life. To appease her and to give me something I could do, together with her, I gave in and joined.
I was allowed at the start to walk for only 20 minutes per session, three times a week. That increased by 5 minutes per session every second week. To begin with, it took me well over 10 minutes to walk 1 kilometer. At the end of 4 months I was walking 1 kilometer in a lot less than 9 minutes, which was the first time in many years that my performance in any of my exercises, either on the treadmill or the bicycle or any of the other machines, had improved. What a thrill that was. I had started to reverse the effects of Pd. I was all fired up and within a year or so, I had got my time down to 6 3/4 mintes per kilometer. I was on a roll. 10 years after diagnosis, nobody would ever have known that I had Pd, and that was after I had been so bad that I had to giive up my work running a large printing company and I was a complete mess. I wrote a book about my Pd experience and published it myself. That book is now titled, "Reverse Parkinson's Disease" and can be got from Amazon either as a book or eBook. Or else it can be got from me on my website reverseparkinsons.net.
With regards to Dr Fisher. I wrote a condensed version of her report - delivered to the 1st World Parkinson's Congress held in Washington - reproduced by SPRING Times in the UK. I have tried to access it on Google with no success. It was very enlightening on what walking does for the brain and the effect it has on Pd. Try to get hold of it, if you can or read it in my book. You can Google my name and probably get more infomation that way. I am getting old now and can't seem to have much success Googling these things myself.
Thanks so much for your comprehensive reply, John. It is so great that you really have been able to reverse your PD. I'll check out your book and the other information. All the best, Joanne
Thanks Joanne. If I could afford to give my book away and post it free of charge, I would, but that is only a dream. I hope you find benefit and comfort from the book and become motivated to doing something to reverse your own Pd.
A personal opinion is that a lot of work done with mis-folded alpa-synucein shows that the problem is transmissible from cells with Lewy body clumps to healthy ones. It doesn't matter why they are healthy either because they are brand new neurones as in a transplant or if they've been laser treated. Without clearing all the cells of their Lewy bodies, and that goes for the ones in the gut, either method needs a lot more investigation.
Money would be better spent in looking at the causes of accumulation of the alpha synuclein in the clumped form before trying to laser clean every affected cell in the body.
Do you know if there is anything hopeful in our future regarding the discovery of the causes of thw accumulation of the mis-folded alpha=synuclein clumps?
Do you play cards? I mean the sorts of games where you get a hand and then play for a while before you can get your act together and decide which to keep and which to discard? (Perhaps its just be that dithers about these things.)
I think of Parkinson's research as something like that. When my husband and I were first looking into the science behind the causes of Parkinson's I felt nobody had a clear hand. They had bits of ideas from all over. Now though, I think the deck is settling and although there still lots of factors to take into account, the areas being followed do have some cohesion. The mitochondrial faults in some people, the waste disposal systems of the cells and the way in which mis-folded proteins can replicate are all linked.
I don't know if there will be a usable breakthrough in the very near future but I do feel that everybody is looking at the same area of brain chemistry now. here are links to some of the work being sponsored bu Parkinson's UK in this area
At least the researchers are playing with the same deck of cards now and I have great hope that meaningful (useful to pwP) progress will be made in the next few years.
i have to say, misfolded alpha synuclein, i think, maybe grafitti from behind the toilet door,..L.OL.
MY OPINION, i think a surplus of protein is created,but, by way of the system being unable to identify and resolve a dopamine loss.( ,only when the loss approaches 23% do PD symptoms show) so the system maintains transporter proteins at pre-loss level and a surplus develops a cocktail/mix overflows solidifies,,
MUTATES,,LEWY BODIES FORM
PARKINSONS DISEASE.... THE REAL DEEL
THE INABILITY TO IDENTIFY A DOPAMINE LOSS, OVER A PERIOD OF TIME, CREATES A PROTEIN SURPLUS ,THE ROTTING PROTEINS,
FURTHER CONTAMINATE GOOD CELLS IT SPREADS
(THIS, THE BAD APPLE IN THE BARREL CNCEPT)
THE DOPAMINE LOSS CREATED BY REDUCED SLEEP TIME, OR DIET OR OTHER
THE POSSIBILITIES::
CLEAN THE CELLS BY MODIFIED NECROSIS OR APOPTOSIS OR A NEW SWEDISH LASER IDEA,,,,PAARKY NO MOW..ER
BEING ABLE TO IDENTIFY THE DOPAMINE LOSS EARLIER MAY BE WAY TO THE END OF MR PARKINSON
Do other people share the opinion that it is not in the interests of pharmaceutical companies to find a cure for any health problem. It would put them out of business. They only want to treat the symptoms of those health problems, and in that way make a mint of money.
Is it, for the same reason, in the interests of the neurologists to find a cure for Pd and other movement problems. My feeling is NO, it is not in their business interests! Fortunately, not all neurologists are out and out business people. Some of them have their patients interests at heart and would welcome a cure. But they are not the people looking for the cure for Pd. Scientists are the people looking for a cure. The question is, "Are they going to sell that cure to the patients or to a paharmaceutical company or companies?" If they do that, will we ever see that cure?
CYNIC!! I am fed up with conspiracy theories etc etc & the energy wasted on pursuing them which could be put to constructive use. Of course drug companies want to make money - that is what employment/investment is about. Medical professionals work for a living ie they get paid, they are employed, they need money to live. I believe most want to improve the quality of life for their patients &....dare I say it? ...find a cure. I personally do not believe in a 'cure' as such because I think of PD as a syndrome with a number of different triggers/causes.
Re the motivation for drug companies to find a cure: think of the kudos!! Every day it seems some new condition is identified - there will be no shortage of potential 'cures' to be found (& the funding to support this).
Hi honeycombe3. I did not talk about any conspiracy theory, I pointed out that it is not in the interests of both groups to actively look for a cure. It does not make good business sense, and they are all in business. There is no crime in getting on with earning a living. I merely want to make it quite clear to other Pd sufferers that it is up to us to do the best we can to overcome the effects of Pd. If a cure is going to be found it will come via an organisation such as MJFF. They have our interests at heart. They deserve our full support.
The other point I want to make quite clear is that certain exercise has been scientifically proven to produce GDNF in our brains and that GDNF does reverse the symptoms of Pd. As a result of that, I have managed to live a very acceptable lifestyle, no different to any other person without Pd. My Pd is not cured but as long as I do my one-hour walk, three times a week, and avoid harmful stress, I manage to live a very enjoyable life. Byb the way, I also haven't needed to take any Pd medication for the past ten years, and that really does worry the pharmaceutical industry!
Could I have some references to the glial cell regeneration caused by exercise please. I would love to have that information to link in with the other research I am following.
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Who is Taking Thiamine HDT & a Brief Summary of Any Benefit That You Attribute to its Use? / Reference Page / Email : carapetata@libero.it
Hubby’s mycotoxin results for anyone who is interested
SPARK - BIIB054 (mostly for Gio)
The Old Me vs. The New Me
