WOW!!!

[Hamish]

bbc.co.uk/iplayer/episode/p...

WATCH THIS IF YOU SUFFER WITH PD TREMOR . THIS GIVES ME HOPE

[sherrywolz]

Not available for viewing in the US?

[Hidden]

Not available in Canada either?

[rtag]

Can't view it. Could you summarize what it is?

[Lestur]

A patient with tremor has pin point ultrasound treatment and tremor is gone. Would like to know if it will prevent me going down that route any further than I am now!

[Susie01]

I signed up for a trial using ultrasound at the University of Virginia. It seemed hopeful. I was not able to participate since I could not drive so far and they did not offer reimbursement for travel related expenses during the trial.

I am sure that many PWP would participate in studies if travel costs were covered. This is an important issue that needs to be brought to the attention of researchers. I have a good friend whose father had PD and volunteered for palidotomy years ago, travel costs and hotel expenses were paid at that time.

[Hikoi]

Unfortunately can only be viewed if you live in the UK

[honeycombe3]

I saw this ( UK resident) & I was duly impressed. I am currently taking part in the Transeuro stemcell transplant trial & a number of issues currently being discussed on this site are pertinent.

Re travel & joining trials - apart from the financial restrictions if one doesn't live near the trial site a sense of isolation can occur. It seems to be a given that volunteers will be familiar with the various experts involved ( I didn't know who the surgeon was) as they will be if you live locally. Naturally this can be demotivating.

Re being prepared to put our lives on the line to trial new products/ procedures without going through the procedural hoops - there are ethical as well as practical considerations. Recently Maurice Saatchi's wife died & he started a campaign to address these issues - if one has little or nothing to lose & is prepared to take a calculated, informed risk, should they be denied this right? should procedures/treatments approved for one condition be allowed use with informed consent without the surgeons/medics being prevented from doing so by their employers for fear of legal action? Nothing is black & white but don't let that stop people volunteering!

[jillannf6 in reply to honeycombe3]

hi honeycomb 3

have just seen your reply to to the original post not eh PW SITE

I would volunteer for anything which might whelp mm or fellow PSP SUFFERERS

But there is not much available at the moment in the form of drug or other trials

i take 2 supplements at the moemtn coq10 and turmeric not sure fi they are doing anygoood but they ar ento doing me any harm

so that is the way ia m at he moemtn

lol jill