Hallucinations

[jonroberts]

It's 5am MT and I was awaken after e periencing the same hallucination for the second overnight. I was breathing heavily and was acting out the dream. My wife woke me up before I would have fallen out of bed. Any help?

[Jbcourcy]

Are you having hallucinations or real crazy dreams which you act out?

[jonroberts in reply to Jbcourcy]

Crazy and sometimes scary dreams I act out .

[Hidden in reply to Jbcourcy]

I was having some crazzy dreams before I was diagnosed. Usually quite violent waking up with arms flailing. Wife in danger so I went for anger management. While attending I was diagnosed with PD.I still get them occasionally.

[landman]

Been there, done that. What meds are you taking? As for me, Azilect, Amantadine, & Neupro Patch. I remove my patch before I go to bed most of the time. Sleep much better. Went from hallucinating while sleeping to no dreams. I feel strong all day with only 5 hours sleep. I am also retired. Although I will be talking with my MD"S about my hallucinations that I experience when I am awake. Including my eye doctor.

[Hidden]

I should look to the drugs you are taking and revalueate with your doctor.

One of the reasons i came off Neupro patches was the sleep problems dreams, etc.

Even now the Madopar I take, I get dreams where I wake up and think I am still in there.

When I hear or read of that saying ''Live the dream''! Meant to mean something really up market and fabulous.

In reality it can be a nightmare!

[allofatremor]

Hi, it happens with my husband all the time! at least you admit to it, as he won't, its obviously the meds, but if you are doing well otherwise on the meds best sleep in spare room, and put a small mattress next to bed incase you fall out. My husband fell out when it first happened (no safety matress) he landed on his face and head, and was really shaken up, since then mattress for safe landing at the side of bed. Its not just a matter of falling out, its when you are acting out your dreams you are throwing your arms around etc, your body is out of control and you bang into things and can fall quite heavily. I was given the matress idea from a Parkinsons UK forum member. x

[Percy-Parkie in reply to allofatremor]

The mattress is a good idea. My hubby is not aware he is trying to half kill me in the night so I go off into the spare room but still cannot sleep in case he too falls out of bed as has happened a few times at the moment there is little else that I can think of. So glad this is talked about as when we mentioned it to the consultant he just gave him some sort of zombie drug that will make him spaced out and useless to himself!! Not for us. Spare room and padding on the floor is a good idea. Thanks for bringing the subject up I do not feel alone anymore.

[allofatremor in reply to Percy-Parkie]

its awful at night in bed i keep awake all the time because my OH jerks and jumps so violentley i am frightened he is going to give me a backeye or worse still knock my teeth out lol, the things we do for love, back bedroom tonight i'm shattered xxxx

[slogan67]

My mom has this issue and has been in the hospital twice for hallucinations. She worries about going to sleep because of it. She has Sun Downer's now and it just started in September when she got a very bad bladder infection. The doctors had her on a lot of med's and I couldn't get them to re-evaluate what she was given. It took her being a psych ward to get her med's changed. She is on Magnesium, Potassium, Plavix, Metoprol tar and Sinement. I feel like this was brought on by the cardiologist upping the dosage of Metoprol on January 3rd, which started her fainting when standing up. This made her stop drinking water and in turn she got dehydrated and in the hospital last May. She went to rehab and was doing great!!!! A different doctor changed the Metoprol in September and the dizziness stopped. Then August she got the bladder infection, four bacterial infections, and she went down hill from there. She would stay up all night just walking and then be exhausted the next day. She would know me for a few minutes a day and night. She went to the psych ward in October. Doctor's stated her mind was fine. But they said she had the start of dementia from the Parkinson. She hasn't been doing well mentally since about November December. She just got out of a psych ward again and is in rehab. I have a new Neurologist appointment on February 18th as well as a new Primary Care Doctor. I'm not liked at UAMS as I went to the Hospital Administrator, who then had the Risk Management person call me. I don't cut them any slack when it comes to them telling me "your mom is old and has Parkinson"!!!! And I keep going to new doctors, when they don't give my mom the care she needs. I started taking her to a Doctor who is 70 yo and a Geriatric Doctor. After the 3rd visit he said she was a hard case and what nursing home was I going to put her in. He watched me roll her down in one of his office computer chairs three times and never offered to put in her the hospital. Now, I have taken her to the ER numerous times and they find nothing wrong other than low magnesium. We've seen the same ER Doctors each time and feel good about how they deal with my mom. But it's how they act about what the other Doctors don't do or say that tells me, all is not right. So from the CT scans, blood work and all other test she is healthy. It's straight up the Parkinson causing her so much trouble. Does this sound familiar? What suggestions do you have and if I'm doing something wrong, please tell me. I want my mom to be ok.

[quirkyme in reply to slogan67]

she may be having recurrent bladder infections or even subclinical infections somewhere. Bladder infections and the first thing nurses look for in elders who are 'sun downing.'

Around her they have geri-psych units for when doctors are trying to figure out if it's a medical or psychiatric problem. (Like there's a difference!! I mean that facetiously. Mental illness is a medical issue IMO).

Also I saw a medical program about an elderly woman who was getting too much Vitamin D. When they stopped the high doses of Vit. D. she got back to baseline and her high functioning self.

This was on Second Opinion program: secondopinion-tv.org You can watch it online.

[slogan67 in reply to quirkyme]

Thank you for the information! When she was in the psych ward in October, they put her on very high dose of Vitamin D for 6 weeks after she got out. I will check into her blood test results. Her self confidence is very low right now. I hate seeing her that way. I appreciate you taking the time responding.

[quirkyme in reply to slogan67]

here's the link: secondopinion-tv.org/episod...

also there's an older program on Parkinson's.

[LOPL in reply to quirkyme]

I was diagnosed with PD 9 years ago. I have DBS and take Stalevo 5 X per day, along with 1/2 tablet of Azilect. I have been taking Azilect for 4 1/2 months and it has been almost a miracle drug for me. I had a bladder infection in early Dec 2013, and another in Feb 2014. What is sundowning?

[quirkyme in reply to LOPL]

it's behavior changes when the sun goes down. People with some dementia can have it. (Lots of us don't like night so it's part of our species).

Bladder infections in elders (older elders maybe with other health issues), take a toll on the body and can cause behavioral changes.

Not to worry, bladder infections are common and usually don't cause 'sundowning'--mostly in the frail elderly. The RN who runs the American PD Assoc. groups hereabouts reassures people about late stage PD, saying 'it's probably not as bad as most people imagine.' So don't 'borrow trouble' and have dread about what might become of you or loved ones. Live and enjoy life today!!!

[quirkyme]

One of the saddest things about PD was seeing my husband, still in his 60s when diagnosed, lose his sense of self-confidence and competency to continue to do things he always had done. Maybe fear gets ahold of us, at times.