The invisible battle: And here we are... - Cure Parkinson's

Cure Parkinson's

26,586 members27,910 posts

The invisible battle

8 Replies

And here we are hitting Thursday how did that happen illness or not time slips by and I am ever conscious about keeping ahead, achieving stuff and juggling this mad life of mine. Sat once more in the spotty PJ's I read all the posts from this spirited community and as always inbeteeen the words I nod in acknowledgment that I have had similar or know how that situation feels..does that give me comfort to know I am not alone or make me sad that so many of us face these sometimes exasperating challenges. The invisible illness is the one I find most difficult to level. Yes the loss of words the dyslexia the inability to follow a book. The confidence swings the over sensitivity the tears. Not being able to organise and the chaos of mess. I could go on. Harder to treat, I think so. Harder for people to understand, for sure. But not impossible to live with, nor impossible to overcome, no. Absolutely not. Embrace change, rise up to challenge focus on things you still do well. Have some successes. I make a mean chilli, I can dance, I paint badly but I love it. I keep my smile. Yes I do.

8 Replies

Reading everyone's post is truly helping me understand all of the changes in my life the past 10+ years.

I am finding it easier to be thankful for the positives in my life and not concentration so much on the "problems".

I'd like to thank all of you for being so transparent.

jillannf6 profile image
jillannf6

hi

i agree with henderson haywood and dican

it is what i can do not what i cannot any longer which ic important

but i have lots of challenges to face in the coming months and do nto want to be as frustrated as i am at present when i Cnnnot do something

so i shlall smile and :-)

love jill

maryedith profile image
maryedith

Its the being over senseitive and the lack of confidence that gets to me.

Any one any idea who to prvent this. I blame the meds

in reply tomaryedith

Hey

I think its not to worry where it comes from but to try to take some steps to feeling back in control of your emotions again. What works for me is being appreciated and valued by those around me. So I shrunk my world and only try to have positive connections. You have done a good thing by being honest and wanting to deal with it :-) Confidence for me comes from little successes, so try doing stuff you are good at :-) x

I missed you HH! Thanks for reporting in.

in reply toParkinson_Schmarkinson

I am never far away!

Court profile image
Court

I also find it helps to concentrate on what I can do and try to let go of things I can no longer do. I recently went for a cycle ride, something I have not done for a long time and thoroughly enjoyed it. After I had mastered how to get off.!! I have also started knitting again as this helps my tremor. Caring for my grandchildren and dog walking, all these make me glad for the things I can do. Although I still miss line dancing, I can live without it.

Sue

PatV profile image
PatV

I manage to get up, make my bed, load dishwasher, do morning prayers, feed guinea pig, tidy up once in a while for a Buddhist meeting or visitor, take a shower or bath, if really mobile get out of house once a day to visit kids, go to store or a meeting or a PD exercise class. Thank goodness I found an assistant to help with the hard organizing things. She's an LPN in school to be an RN and makes great miso soup! I'm starting to think if I lived in a residence I could get meals and cleaning and have something left over to go to a museum and do something creative like paint and play music. Interesting what Sue says about knitting!

Not what you're looking for?

You may also like...

I'm getting married in the morning ... how is this possible....

Well Xmas Eve morning to be accurate, and yes I lie here spotty pajamas's once more and think back....

Finding Joy in the Midst of PD

My dear new friends, I've been on this site for such a short time and you all have taught me so...
Josephsimon profile image

A rabbit called Boudicca, coping and ginger beer

I had a rabbit called Bo short for Boudicca, she was my friend, and a wheeled her up and down in a...

'If I'm not bothered, then it shouldn't bother you.....'

I didn't say that, this young woman did ..........

Hard doesn't mean impossible....

So lots of things are hard in life, and mine has pretty tough, I won't go into details but having...

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.