Adalimumab (humira) Causes Hair Loss

[Bucket13]

I’ve been in Adalimumab for 3 months now and feeling ok and is controlling my UC.

However, during the last few weeks I’ve noticed my hair falling out / hair loss. . A work colleague said to me “your hair is everywhere’.

Has anyone else experienced this? Is there an alternative?

Im hoping my IBD Team / consultant can find me an alternative

thank you

[SuzyQ67]

I was on Humira almost 3 years & did not have hair issues. Lots of things can cause hair loss, lack of proper nutrition, flare ups & stress for starters.

[VeraSa]

I'm on Amgevita now for more than a year and do not experience more hair loss than before. I do have pretty long hair but had 'normal' hair loss before, too but the longer the hair is, the more you can see it.

But if you have any concerns, I would just get in touch with your IBD team and explain your thoughts. Could be really some malnutrition or just because of a flair up etc.

[Malachy12]

if you haven’t already had it, I would ask for my thyroid to be checked out. Can cause hair loss. Hope you get sorted soon.

[Bucket13 in reply to Malachy12]

Thank you yes all tested for thyroid and it’s not this. I’m on folic tablets but my blood results weren’t that low 3.6.

I still fear it’s the Adalimumab as my hair only started falling out more since being on this injection

My ibs team just say they are waiting for medication information to see if thee is a connection between hair loss and Adalimumab so continue to keep me in it.

Feeling alone as without my hair I fear I will lose myself

[Malachy12]

You won’t lose yourself! It’s know this must be very scary for you but don’t panic. You will get this sorted and your hair will grow back. Your health is more important in the long run and you aren’t alone. 😊

[Hidden]

I only had 2,infusions and my hair is coming out everywhere! I had other odd side effects like face numbness so I’ve stopped infliximab. Waiting to see if I can start Entyvio. Talk to your IBD nurse. It’s such a complicated journey everyone is different.

[Bucket13 in reply to Hidden]

I’m so sorry to hear this. It’s terrifying isn’t it ahd even worse with no support. I’m still waiting to find out if the consultant / ibd nurses can find a link between Adalimumab hair loss???

My legs also feel weak too.

Reluctantly, I injected myself this morning but dread the side effects!

I found this on my Adalimumab side effects!! Yet no one takes me seriously and blames everything else (stress, menopause etc) , yet I know my body and know my hair has got thinner since on this medication).

Adalimumab Side Effects - hair loss ahd it also mentions weakness in legs which I also get

[Sallyb828]

I definitely have noticed my hair falling out since starting amgevita! I have to remove a whole hairbrush full of hair each and every time i brush it and in the shower when washing my hair i am covered in loose strands everywhere!!! Very frustrating amd hate finding my hair all over the house I've only been on it a few months so am just hoping it will settle! Hope it does for you too!

[Bucket13]

hi I’m sorry yo read your story and really hope your hair settles. If it doesn’t speak to your consultant as there are other meds available

[Anxietylife123]

Hello, I haven’t taken it myself, but my mother who has very aggressive Ulcerative colitis was on this and had excessive hair fall out. She also had a bad reaction to Humira in other ways so had to come off it, her hair falling out stopped after coming off the drug