Drug question: Has anyone got some pros or cons... - COPD Friends

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Has anyone got some pros or cons on thaking DALIRESP (roflumilast)? Just started the low dose....

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8 Replies
janet1944 profile image
janet1944

Hello betmaxbaby I asked my Doctor for Roflumilast in the in June, he hesitated didn’t know enough about it, but did eventually, I then saw. Consultant who wanted to prescribe but was unable due to postcode lottery, thought I was lucky,

It didn’t do anything for me and I had most of the side effects, unusual for me, I’m normally pretty resilient , its trial and error, me personally will try anything, as I’m at stage 4 emphysema , I tried for 3months, some users say its taken 6months to get any benefit and reduced side effects, I hope you’re going to be one of the lucky one, I didn’t say I stopped taking.

Best of luck to you. Hope it works.

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betmaxbaby in reply to janet1944

THKS for the info. Im just on the 250 low starter dose for 2 weeks so far. No sides yet. So your saying you got no help from it so you quit or your sides were what made u quit?

janet1944 profile image
janet1944 in reply to betmaxbaby

Hi betmaxbaby ,was both, if the side affects had eased I may have tried longer, but they didn’t ease t all, so gave up on it. Good luck.

Dgtheel profile image
Dgtheel

I've been taking it for over a year, it's made a good difference in my breathing, I also use in cruse elipta, comifent, and advair inhalers.

betmaxbaby profile image
betmaxbaby in reply to Dgtheel

thanks for the reply, appreciate it.

pgatlanta profile image
pgatlanta

I’ve taken it for a year and improves mucus overproduction and breathe better. The side effect is it may cause Loose bowels and weight loss. For me it actually keeps me regulated. Hope that helps

betmaxbaby profile image
betmaxbaby in reply to pgatlanta

thks for the reply

betmaxbaby profile image
betmaxbaby

betmaxbaby here:::: update on the Daliresp, Took for 2 1/2 months. ugh! could tell no difference in the breathing. Had alot of the sides, loose stools, nausa, headache, anxious. I was all excited for it to help but no such luck. I didnt realize how ugly i was really feeling till i got off it..... So not on my recommendation list.

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