Can someone please help? It is 11.45pm and my body has just gone into a strange mode! Usually I just get the sensitivity in one limb where it cannot be touched as it feels like all my nerves are on the surface of my skin, but at this moment in time it is my complete body from head to foot! It is so painful and all the tablets I take haven't done Jack S--t! I am in sooooo much pain, it is making me cry! I am seeing a Neurologist tomorrow so maybe he can help, although I doubt it very much!!! All the friends that suffer this disease HNPP or CMT as it is better known on this site help me more than specialists do! So all you fellow sufferers can you answer my question and maybe let me know how much worse it can get? This is the worst I have ever been since diagnosis in 1999. Any answers pleeeeez?
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