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Charcot-Marie-Tooth UK
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Finally Diagnosed

I was finally referred to a Podiatrist at a bigger hospital and she took one look at me and said I was classic for CMT and diagnossed me on the spot she said I could get genetic testing done but it wouldn't change anything so unless I need to not going to bother. Just glad to have an answer to my pain.

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Hi, Memabe,

I'm sorry you have CMT but glad you have an answer.

One reason to go to a neurologist is to get confirmation of the diagnosis, which you have decided not to pursue, but another is that he/she can refer you to other health professionals who may be able to help with practical things like exercises and footwear.

I hope that your sons have not inherited it, and that you will be able to get the help and support you need,.

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Hi Memabe,

Great that you got a diagnosis however this diagnosis is no fun. But you already have all kind of nasty symptoms and health conditions so you know.

Can you make a picture of your feet and lower legs and post it here? I am very curious, as I am myself awaiting diagnosis for years now, what was classic CMT according to the hospital?

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I would but do not see a place to add pics

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I have often wondered how people post pics on here!

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If you open a new post you can post a picture. Or you can send a picture in a personal message.

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Thank you, Patricia,

i did an experiment and started a new post; there was indeed a box to click to add a photo. Then I dragged an image from my desktop onto/into the post, discovered it worked, so cancelled it. That is really useful to know. Maybe there's no way to add a pic to an ordinary reply.

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So can this only be done from a desk top I cant seem to find on my phone appy

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If you open a new post you can post a picture. Or would you be so kind to send me a picture in a personal message?

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Hi I still haven't forgot about your pics still trying to figure it out I dont get on site much either so unless a post pops up in my e mail I simply forget.

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Yes I could send in a personal message just let me know how to do that as well on here

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