Finally Diagnosed : I was finally... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Finally Diagnosed

Memabe profile image
10 Replies

I was finally referred to a Podiatrist at a bigger hospital and she took one look at me and said I was classic for CMT and diagnossed me on the spot she said I could get genetic testing done but it wouldn't change anything so unless I need to not going to bother. Just glad to have an answer to my pain.

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Memabe profile image
Memabe
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10 Replies
Amanita profile image
Amanita

Hi, Memabe,

I'm sorry you have CMT but glad you have an answer.

One reason to go to a neurologist is to get confirmation of the diagnosis, which you have decided not to pursue, but another is that he/she can refer you to other health professionals who may be able to help with practical things like exercises and footwear.

I hope that your sons have not inherited it, and that you will be able to get the help and support you need,.

Patricia2015 profile image
Patricia2015

Hi Memabe,

Great that you got a diagnosis however this diagnosis is no fun. But you already have all kind of nasty symptoms and health conditions so you know.

Can you make a picture of your feet and lower legs and post it here? I am very curious, as I am myself awaiting diagnosis for years now, what was classic CMT according to the hospital?

Memabe profile image
Memabe in reply toPatricia2015

I would but do not see a place to add pics

Amanita profile image
Amanita in reply toMemabe

I have often wondered how people post pics on here!

Patricia2015 profile image
Patricia2015 in reply toAmanita

If you open a new post you can post a picture. Or you can send a picture in a personal message.

Amanita profile image
Amanita in reply toPatricia2015

Thank you, Patricia,

i did an experiment and started a new post; there was indeed a box to click to add a photo. Then I dragged an image from my desktop onto/into the post, discovered it worked, so cancelled it. That is really useful to know. Maybe there's no way to add a pic to an ordinary reply.

Memabe profile image
Memabe in reply toAmanita

So can this only be done from a desk top I cant seem to find on my phone appy

Patricia2015 profile image
Patricia2015 in reply toMemabe

If you open a new post you can post a picture. Or would you be so kind to send me a picture in a personal message?

Memabe profile image
Memabe in reply toPatricia2015

Hi I still haven't forgot about your pics still trying to figure it out I dont get on site much either so unless a post pops up in my e mail I simply forget.

Memabe profile image
Memabe in reply toPatricia2015

Yes I could send in a personal message just let me know how to do that as well on here

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