New GP: I saw my new GP yesterday and... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

1,683 members666 posts

New GP

6 Replies

I saw my new GP yesterday and he knew what CMT was, he didn't need to google it :)

6 Replies
HorshamMalc profile image
HorshamMalc

Hi Ulrich - Fortunately it is slowly becoming better known. I was lucky in that my GP is also a trained neurologist and spotted my symptoms before I had any serious problems. Interestingly, my daughter is studying dentistry at Cardiff University where their first year is largely shared with the medical students. One of the very first lectures she attended was on neurological issues and the particular subject, from many possibilities, happened to be CMT. She was the only student who'd ever heard if it!

seasider18 profile image
seasider18 in reply to HorshamMalc

My wifes cousin who is a retired podiatrist said that he had never come across a patient with it.

in reply to seasider18

I find that so strange in his profession.

seasider18 profile image
seasider18 in reply to

The podiatrists at the clinic at my local hospital are much the same.

My wife gets her feet done by podiatry students at a local college. She has out of interest asked third year ones about CMT and they are not informed on it.

in reply to HorshamMalc

Hi Malc, I once walked into a clinic that specialised in sport injuries, I had only taken half a dozen paces into the place and a passing doctor said to me "CMT is my guess" He ended up doing my elbow surgery but as you say, its still hit & miss out there.

seasider18 profile image
seasider18 in reply to

I had that same instant diagnosis from a neurologist who specialises in CMT. I told him that I had genetic testing and nerve conduction tests the year before that did not come to that conclusion. He said did they do the right tests, did they interpret them correctly ?

I said that I believe I have neuropathy caused my having been prescribed Cipro and Flouroquinolones after cardiac surgery and for prostatitis. Good theory he said but you will never prove it.

Not what you're looking for?

You may also like...

Re - New walking aid?

Just a bit of information I learned. Whilst watching a former paralympian being interviewed by...

New comer!

Hi I stumbled across this website whilst researching my recently diagnosed condition (which I...

New to CMT

After two years bouncing from 1doctor/specialist my primary care doctor sent me to the University...

UPDATE

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on with my feet. So he...

Dead leg and Floppy Foot

Any ideas on medication for Floppy Foot (CMT) HNPP My dad suffers from CMT (HNPP) like me, only he...