I have had CMT for most of my adult life but was only diagnosed when I was in my late 40's. I am now 64.
Doctors in South Africa don't seem to know much about this disease.
All my joints seem to have been affected and I was wondering if there is anyone who has a similar problem. I had a total hip replacement three years ago which was a failed operation. I now walk with a severe limp and have to use a crutch. I am grateful that I can still walk but have deteriorated since the hip surgery.
My jaw bone is loose and cracks when I chew.
My thumb joints have completely slipped out of their sockets.
I suffer with severe anxiety and depression.
Ever since I can remember, my left leg starts paining as soon as I lie down and rest. The pain is hard to describe, but I have to stretch my leg to get some form of relief. This goes on for about an hour or two before I fall asleep.Recently my arms have started to ache as well. It almost feels as if I have strained the muscles in my upper arms. Can anyone tell me if this is cmt related.
I also suffer with neck pain and muscular spasms.
I would really appreciate feedback from other CMT sufferers as I never know if my symptoms are from CMT.
I've been told by doctors here in South Africa that all the symptoms I've been experiencing over the years (apart from my joints) are anxiety related. To name a few - burning sensation, prickling or pins and needles sensation, constant fatigue and lack of concentration.