Hi everyone,
I'm Jackie , I'm a 50 something sufferer of chronic pain thanks to Ehlers Danlos Syndrome and Fibromyalgia. I try to look on the positive side of life and love a good giggle. I also have chronic depression and anxiety but I think that is common with long term illness. I look forward to chatting to people.
Welcome Jackie, we all share the pain demon. It helps to talk about and relate to others though. :).
Hi jackie i have similar issue as you and yea its so hard to keep going through the same thing over and over but we arw doing this so it can be done and all we can do is keep fighting! All the beat and im about if you need to chat!xxx
Hi Jackie,
I have two of your conditions ,but don't know what ehlers danols is . But feel your pain
I have chronic back pain,and have had two lots of surgery on my spine ,with no relief from the pain .
And am on a load of drugs to help . They only take the edge of it . But I live in hope for a cure ,fee
Hi, Jackie. Yes, we never have just one condition that affects us (and all around us!) and we carry on battling away day-in day-out. After reading a couple of scientific papers I sourced on the internet regarding Fibromyalgia I've started bathing 3 times weekly in hot baths with 2 cups of Magnesium Sulphate ( Epsom Salts ) and have noticed an improvement in my mobility, muscle and skin tone all in just two weeks. I've no idea how this treatment would affect the differing Ehlers-Danlos Syndrome sufferer. Perhaps it is worth checking out? Also, for a friend I sourced this material on the six Ehlers-Danlos Syndrome types - it is a helpful resource intended for medical professionals really, but do visit this site and just take your time reading this material - medscape.com/viewarticle/86... - all the best, Jackie. Take Care x
Living with increasing pain