I have had symptoms of palindromic rheumatism for 7 years. It has come alongside a diagnosis of Wegeners vasculitis which I am being treated for. I see the rheumatologist a few times a year and severe, short lasting joint pain is always top of my symptom list. My rheumatologist never comments. So in the last few weeks I have done my own research and bingo, my symptoms fit 100% palindromic rheumatism. I feel frustrated that the rheumatologist has never identified it as this. I will ask at my next appointment but whatever she says I am convinced this is what it is. I just wanted to connect with people with PR, looking for tips or ideas as to what causes a flare. I went 3 years without a single joint pain, now it's back to normal with daily random pain.
Palindromic rheumatism : I have had... - Cloudy with a Cha...
Palindromic rheumatism
this is really interesting. I used to be a life assurance underwriter (so if you applied to my company for life assurance I would get a report from your doc and possibly ask for a medical examination) and in all the thousands of applications I saw over the years, about 25, I never came across this particular version of rheumatism, So it can’t be common! Which I’m sure you are already well aware of.
Which is possibly why (1) no-one has yet responded and (2) your medical team hasn’t mentioned it.
I did a bit of research online and can see nothing about how to prevent flare-ups, but if you contact one of the several charities which support those with arthritis in all its glorious forms you might get somewhere?
Thank you for responding Happyrosie.
Most rheumatologists aren't aware of Palindromic Rheumatism, it is quite niche. I had to research it and then educate my Rheumatologist
I am also convinced that I have it. My rheumy seems to ignore it when I mention it. My late uncle had it and is so far the only person I know who was diagnosed with it. I fit all the criteria but with no diagnosis.
Just seen these posts about palindromic rheumatism .
I have been treated for rheumatoid arthritis for the past two years very successfully with methotrexate but since being ill at Christmas I have had
flares every week especially in my shoulders and other parts of my body .
I notice the flares occur when I have done some every day tasks eg carrying bags chopping etc. I went to a new rheumatologist who straight away said she thought I had palindromic arthritis rather than rheumatoid arthritis as the pain was in all different parts of my body and I had little swelling . My hands don’t look arthritic even though I have had a lot of pain . She has suggested changing my meds and giving me a shot of Depomedrone which I am having this week but like you when I read about palindromic arthritis I think she could be right .
Hi....how did you get on with your new medication? Hope it is helping
It’s been 8 days since the injection and so far so good . Pain free and even contemplating going back to tennis !!
Thanks
