What a crazy disease: Hi my friends. Just a... - CLL Support

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What a crazy disease

Guffy profile image
11 Replies

Hi my friends. Just a little update on my progress. After my ALC was 71 in October and the haemo was telling me I would be treated for the first time after Christmas, it dropped to 68, and my stay in hospital is off. Whoa! What a weird disease we have! Yay? I'm grateful, but another part of my brain says "let's get it done, already!" I'm Ok. Just sharing. All the best to you all!

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Guffy profile image
Guffy
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11 Replies
Spark_Plug profile image
Spark_Plug

Best to you too, Guffy🙂

Guffy profile image
Guffy in reply toSpark_Plug

Thanks. And to you!

Poodle2 profile image
Poodle2

Very unpredictable, up and down, like a roller coaster. All the best to you. ❤️

Guffy profile image
Guffy in reply toPoodle2

Thanks muchly. And to you.😀

BigDee profile image
BigDee

Hello Guffy

The only benefit to having very aggressive CLL for me, was not having any uncertainty about when to start CLL treatment. My ALC never platitude or went down, looked like a hockey stick on my charts. Blessings.

Guffy profile image
Guffy in reply toBigDee

And to you. Hope all's going well.

Islandvibes profile image
Islandvibes

hold off treatment as long as your not feeling bad. Medication not without side effects .

Guffy profile image
Guffy in reply toIslandvibes

Yes. I must keep telling myself that. Thank you.

whitewsu profile image
whitewsu

I hear you! Mine has been increasingly going up, but there are dips at times which make me wonder just what is happening.

Guffy profile image
Guffy in reply towhitewsu

Weird, yeah? I find the challenge is not to let it bother me. It's hard not to think about.

whitewsu profile image
whitewsu

Good call!

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