Hello, I’m a 58 yo male that was diagnosed with CLL in 2019.
currently stage 0. W&W under the supervision of my oncologist.
Searching for natural ways to keep my numbers from climbing. Joined this group to share and find other things that have helped living with CLL.
Welcome. Tried a lot of stuff and it seems like the counts move independently of everything I’ve tried. However, I think you can keep yourself generally healthier and that will probobly help in treatment and with other conditions. Exercise prolly an easy good place to start if you’ve not already.
Hello Clydelucy
Welcome, welcome. I have had CLL for going on 8 years and have tried just about every remedy to slow my CLL. Nothing worked except FDA approved treatments. Worse thing I tried was hedge apple mixed with apple sauce and discovered that there is a reason animals do not eat hedge apples and why they are so abundant. LOL. I suspect just about all CLL patients try different supplements and home remedies when first diagnosed with CLL. One can always hope. Blessings.
The best evidence, which is continually growing with new studies, is for keeping physically active. Not only does exercise boost our immunity (very important given the risk of death from infection is a particular concern with CLL, see healthunlocked.com/cllsuppo... ) maintaining physical fitness has been shown to help during watch and wait and during treatment. See the first reference link in that post.
Neil
Thank you for your reply 
Welcome. I think we all looked for 'ways'. I tried so many things but nothing really worked for me. Green tea/tumeric to name but two. The rise in wbc was not linear over the 8 years since diagnosis and I cannot explain that either. Upshot, I went into treatment in 2023 with a count of 160,000. Keep sharing your journey please.
Same age and gender, same year of diagnosis, same interests. You look like you would benefit from reading my bio and posts 😀
Dennis, the only thing that I believe is helping me is Vitamin D. I was first diagnosed in Washington State and my counts rose over two years to about 29- considered too low for treatment now, but back then the doc was already talking chemo. Moved to Virginia, started taking D, and my counts fell slowly down and stayed down. 17 at last check, over sixteen years in. So, I conclude sunshine and D are helping. I take 5,000 iu daily and my D levels are testing normal. Good luck!
Yes a new report just recommended D3 slows CLL down during the watch and wait period. Just got some!
I tried an extensive list from curcumin, green tea and everything I could find backed by a study. Nothing stopped my progression. Lots of bullshit out there. Curcumin did help with body aches though. Acala and Obin destroyed my leukemia. Probably the most important supplement is vitamin D3, with K2-MK7, to get vitamin D levels into a range for overall health based on my research. Keep healthy with exercise too. Being healthy will help with any possible side effects from FDA drugs. I also engaged two CLL “experts” with claims of controlling CLL with diet and lifestyle. My experience is they were full of shit and could not back up anything they told me. For instance why one type of fish is good and another is bad for CLL. Lots of snake oil salesmen. Be good, there are lots of amazing treatments that do work amazingly well.
thank you so much for your reply. God Bless …
thank you so much for your reply… god bless you !
Hi I was diagnosed last year with Chronic lymphocytic leukaemia Binet A.
Mutated IGHV normal TP53 by FISH TP53 wild-type.
I am a 54 year old male diagnosed 2023 and on watch and wait with a wbc of 92 , and yeah i have gone down the route of looking at diet , sound frequencies etc but what i have got on a positive note from this disease is that dont take life for granted and live every day like its your last ! Make the most of every day you have . We all hope and pray for a cure and the science has got better over the years . Stay as healthy as you can and do the things that you can control like eat as healthy as you can ! Exercise as much as possible!! Dont sit still and keep moving!! We are not in control of this illness but we are in control of how we react to it ! I pray for you all .
Hot Sauna for CLL Patients
Acalabrutinib to treat CLL & AIHA
Has anyone with CLL experienced difficulties after cataract surgery? 
Shingles
tiredness
