Acalabrutinib

[Dureha]

Experience?

[lankisterguy Volunteer]

Hi Dureha,

I have 2 suggestions-

first please edit your posting and lock it - restrict it to this community. See #12 c) on this pinned post: healthunlocked.com/cllsuppo....

12) Your PRIVACY and SECURITY are very important

c) Changing privacy status on your existing post. If you accepted the default “unlocked” setting for your original post, you might later decide to change it, so more people will feel free to respond. To do that: (i) Go to the end of your post— select "More v" then "edit" from the dropdown menu. (ii) Scroll down to "Who can see my post" and select "Only community members" (iii) Close post by selecting "Post" at bottom left (iv) Check privacy symbol has appeared (little grey padlock)

and then #3 on the same pinned post:

3) Complete your profile. If members know your nationality and details of your CLL history, they can respond to you more appropriately. Try to keep it updated as your situation changes. Use this link to access your profile: healthunlocked.com/profile/... You can access the profiles of others too, by clicking on their avatar pictures. Having people’s background information is a big help when replying to them

>

Next your question is very broad, so perhaps you can peruse these 1425 past postings that discuss acalabrutinib:

healthunlocked.com/cllsuppo...

>

Len

[Newdawn Administrator]

Hi Dureha,

As Len says, it’s quite difficult to advise without some background information to inform our comments. I see from a previous post that you are about 84 yrs old and have had previous chemo many years ago and 5 yrs ago, your doctor wanted you to consider further treatment (Ibrutinib or further chemo) due to falling platelets (they were 80,000 at that stage). Did you have further treatment at that stage?

How are things now? What issues/symptoms are driving the need for treatment? Acalabrutinib is a very effective ‘maintenance’ treatment taken orally and many of our members are doing very well on it.

Do you have concerns about taking Acalabrutinib?

Newdawn

[Skyshark]

No experience.

There are a lot of possible side effects. They have to tell you all about them so you can sign an "informed consent" before treatment.

No one has them all!

Many have none at all.

Some arrive early in treatment, some come and go, others take a long time to manifest.

No one can predict who will have which side effect.

[Pageboy]

Good!

[Nucleusman]

bruising all over body (may be due to blood thinners), fatigue and lower immune system otherwise ok

[Flyfisher70]

I started on acalabrutinib after 5 years on ibrutinib. I have better energy and fewer side effects. I just generally feel better.

[Saksam]

My husband has been on Acalabrutinib for 2 months now. Only side effect has been some minor bruising.