Thirsty when tired..does anyone else notice th... - CLL Support

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Thirsty when tired..does anyone else notice they're very thirsty on bad fatigue days ..

CountryHarbour profile image
21 Replies

Im 58 numbers are low but fatigue is a constant thing..also have bouts of anxiety..I go to bed early but nothing seems to help

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CountryHarbour profile image
CountryHarbour
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21 Replies
Ellieoak profile image
Ellieoak

when did you last have an appointment with your doctor? You may need to get on treatment. But either way you have to drink lots of water everyday! It is the upmost thing that you can do to help your self. Good luck, Anna

CountryHarbour profile image
CountryHarbour in reply toEllieoak

Thanks ..I do drink a lot of water pretty much daily ..blood work says I don't need treatment..numbers are low so far .. relatively speaking..

Spark_Plug profile image
Spark_Plug

Have you had a GP check you for other issues? Extreme thirst can be an indicator of diabetes.

LeoPa profile image
LeoPa in reply toSpark_Plug

That was my first thought too.

SeaChanty profile image
SeaChanty

I can only speak for myself. I go to the gym and get on the treadmill for 30 min or I go outside and take a walk. I try to get my heart rate up . It’s the only thing that has helped my anxiety and insomnia .

LeoPa profile image
LeoPa in reply toSeaChanty

A melatonin supplement can help with insomnia too. Walking definitely helps my occasional lower leg fatigue.

Jotame profile image
Jotame

In terms of other people experiencing this, one of my nagging annoyances is a dry mouth. Maybe related the thirst you experince? So many nagging little annoyances! Yes, I'm getting older but all these little symptoms are not normal in the healthy population.

LeoPa profile image
LeoPa in reply toJotame

Do you drink lots of coffee? I get a dry mouth after three cups 😄. But then drinking more water fixes the problem. And it flushes the kidneys too 🤓.

Nannythursday profile image
Nannythursday in reply toJotame

I too have a dry mouth, especially at night, so much so that my tongue sticks to the roof of my mouth. I have consulted with my gp and been given a nasal spray as she thinks I sleep with my mouth open. I drink lots during the day.

claree_ford profile image
claree_ford

I eventually managed to connect my extreme thirst (feeling thirsty even while my mouth was still wet from drinking a pint of water) to dairy consumption. I now try to limit my lactose intake when at home and I have found that helps. I am NOT lactose intolerant as such - that is a specific and serious thing, but, especially on some days, I do seem to get a bit of an allergic reaction to dairy products - perhaps that is an avenue worth your exploring?

LeoPa profile image
LeoPa in reply toclaree_ford

Also note that a low sodium intake can cause thirst even if one drinks lots of water. That feeling of thirst when you are full of water up to your neck and still feeling thirsty? It means your body is craving salt, not water.

opal11uk profile image
opal11uk

Dry mouth can be caused by the drugs we take, same with dry eye. I take a water tablet which causes dry mouth and it was so bad just before last Christmas that it caused an infection in my salivary gland, had to have antibiotics and was then recommended to suck a boiled lemon drop, sugar free, sweet. You can also buy tablets that dissolve on the tongue for the same reason, to relieve the dry mouth feeling.

LeoPa profile image
LeoPa in reply toopal11uk

What is a water tablet?

Ladylin151 profile image
Ladylin151 in reply toLeoPa

Likely something like furosemide. For things like swelling, high blood pressure and "water-weight gain" or congestive heart disease.

LeoPa profile image
LeoPa in reply toLadylin151

A diuretic then. Makes sense that it could cause thirst and dry mouth.

opal11uk profile image
opal11uk

Furosemide - for fluid retention. I am actually a heart patient but visit this forum for my husband who has CLL. So together with that drug and a couple of others I am plagued with dry mouth and dry eyes but the dry mouth was more noticeable when I started the Furosemide.

JigFettler profile image
JigFettlerVolunteer

Please G0 and see yr family Dr.

Essential you are checked for sugar levels.

Empirically, what colour is your urine?

Urine orange and thirsty ... perhaps you need to drink more water.

Clear urine and thirsty... check for blood sugar.

Other causes exist.

Don't guess. Get checked.

When you do ... take a fresh urine sample with you.

Jig

Otange profile image
Otange

Hi there, I'm so with you on this as I am also suffering with fatigue and anxiety.I wake up in the morning feeling sedated and drag myself to work.

My numbers also don't require treatment either. Blood work all checked no explanation for fatigue

My anxiety comes when I am at happiest which so weird as never suffered before,

2 years since diagnosis and the only thing I force myself to do lot of walking and always come home wrecked as though I climbed a mountain.

But seems to work for my anxiety keeping me a little calmer.

My own thoughts not from doctor is its PSTD from the news of having CLL.

Because I was never anxious before!! I hope this helps your not the only one out there😎

splashsplash profile image
splashsplash

Ive found Vitamin B12 really helps with fatigue

may04cll profile image
may04cll in reply tosplashsplash

how much B12 works for you?

Baz209 profile image
Baz209

It maybe worth getting checked for your minerals, for example magnesium, and vitamin B12 could be your symptoms. But got to your doctor to get that checked.

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