struggling

[Givemestrength23]

just finishing month 5 of ibrutinib and. Ventoclax does things improve along the way, had a good day yesterday today feeling decidedly under the weather. Anyone further along can shed light on what might be to come

[LuzyCLL]

Are you taking Acalabrutinib and Venetoclax in a clinical trial? I am about to start one.

[Givemestrength23 in reply to LuzyCLL]

Not on a trial , having treatment 15 month treatment plan

[Thundercat2]

I finished treatment with Obinutuzumab and Venetoclax in February and reached MRD- status. Initially there were a few rough patches but all in all things are going much better now.

Would you say you are feeling poorly from side effects or do you have an infection of some kind? I would touch base with your specialist either way if you don't start feeling better soon. There are many things they can do to address whatever issues you are having.

[Givemestrength23]

thank you, treatment has caused other issues, stomach, heart, struggling to cope

[Givemestrength23]

I’m definitely depressed

[Phil4-13]

Givesmestrength23, oh, feeling depressed brings such an ugly, dark cloud into our thinking. I pray you can push it out of your mind. I've learned to tell my husband when I feel that cloud moving in. He can't do a thing to remove it, but then loneliness that dark cloud brings seems to feel less. I also turn to my faith and push, and it does take a real hard push, to "get up and do something!". It might only be to sit outside or sweep the floors in my house, but both stir my mind towards better thinking. I have realised just sitting and thinking gets me feeling worse and brings UP my heart rate. Not good! Yep, it takes work on our part to get to better thinking. And I'll add this, too, no kidding, chocolate helps!🙂 Sandra

[SurviveOr in reply to Phil4-13]

After I had three stents put in my chest, a Cardiologist told me, "Dark chocolate is good for you ... comparatively speaking." ...

... and I always follow my Doctors' orders ... comparatively speaking ...