CLL and Parotid Node Swelling

[313313]

Had anyone with CLL experienced swelling of the parotid lymph nodes?

[lankisterguy Volunteer]

Hi 313313

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I had to look up the specifics, and thought that I had every possible node swell at one time or another, but it appears that I did not.

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I did have swollen 2: Submandibular lymph nodes

3: Supraclavicular lymph nodes

4: Retropharyngeal lymph nodes

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You might find some more information in the box on this page labeled

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Len

Paratoid lymph nodes.

[Davidcara]

I had parotid node swelling before treatment. In fact, my GP orders a CT scan, which verified this. Some days more swollen than others. Disappeared after I started ibrutinib

[Ironj]

Your Parotid gland ( salivary Gland ) is not a lymph node. I get that swelling often when I eat certain foods. It swells from a stone blocking the saliva. I had a swelling at my last appointment with my CLL Dr and he said he gets them often as well. I went to an ENT 10 years ago and he told me to rub my jawline where the swelling is for 5-10 min and will go away. I do that and it goes away. I’ve had this for at least the last 10 years.

John

[theclarksark]

I had a parotid tumor which caused hard swelling. It did not come and go - it was always there. Finally had it removed to make sure it was cancerous.

[Red49]

Both of mine were enlarged mainly visible just to myself and specialist , one side larger than the other. Once I received treatment they went away.

[NaturalWaze]

Yes, I had swelling in my parotid gland. I had to get it biopsied to make sure it was CLL and not anything worse. It went away with treatment.