Ventoclax: Has any one getting free ventoclax... - CLL Support

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Ventoclax

581959 profile image
8 Replies

Has any one getting free ventoclax not on

Research and how long for?

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581959 profile image
581959
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8 Replies
LovelyLilyGirl profile image
LovelyLilyGirl

Hello. Yes! I was treated starting in April 2020 on Venetoclax. The insurance refused it after I had already started my infusions of Gazyva. Lovely insurance companies. The pharmacist at UCSD got in contact with Genetech and Medvantics, had me fill out some paperwork, and I got one year supply free, delivered to my door once a month.I took my last pills on May 1 and am uMRD.

Good luck.

581959 profile image
581959 in reply to LovelyLilyGirl

Did they offer you more?

LovelyLilyGirl profile image
LovelyLilyGirl in reply to 581959

I only needed 1 year. But was told if I needed to continue, they would extend the prescription. I was pleased to get 12 months free.

581959 profile image
581959 in reply to LovelyLilyGirl

Hi IrisI’m in New Zealand on a trail of it which I can stay on for life. At the moment I’ve only heard of people getting it free for two years so if I move I have to fly every 3 months to get more

LovelyLilyGirl profile image
LovelyLilyGirl in reply to 581959

Tough situation. I wish you the best 🙏🏻 Sally

lankisterguy profile image
lankisterguyVolunteer

Hi 581959,-

I have been getting Venetoclax from Genentech Access to Care at no cost every month since June 2016. The first FDA approval was in April 2016, so only a few patients could be on it before me.

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I have heard of several others that also had insurance coverage refused so they qualified.

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E-Lynn may have started with that program / benefit about the same time I did.

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Len

richutchens profile image
richutchens

Genentech will send it to you at no charge. They sent it to me when I was on it. One page form. Very fast service.

Analeese profile image
Analeese

I also am getting Venetoclax free. My part D pays for 2/3 and I got a grant for the rest. Publix pharmacy did all the paperwork with just a couple of questions for me.

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