Good To Meet You

[Jmiah717]

Hi, everyone. I've been lurking around for a while and thought I'd introduce myself. I am Jeremy. I am almost 40 and I've had CLL for the last 14 years or so. Still on WW but that's likely to change soon. I hope anyway. I'm unmutated but my markers other than that are pretty unremarkable. And, as you can see, I've enjoyed a long period of time with no treatment. I'd say no symptoms but about 2-3 years ago I started having some issues. Anyway I hope all is well and thanks for letting me say hi.

Jeremy

[lankisterguy Volunteer]

Hi Jeremy / Jmiah717-

Thanks for introducing yourself- and welcome to the group that none of us wanted to join.

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I hope you have read through the "Pinned Posts" on this page. If not please explore them.

Although it is no longer in the first 5 Pinned posts, this one is also suggested:

healthunlocked.com/cllsuppo....

Please see #3 and #12b

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You may want to go to your profile: healthunlocked.com/user/Jmi...

and add your CLL history in the top section where it now says "Hi I'm Jmiah717"

You can copy and paste the text from your first posting, and then we will have that easy to find as you post and reply in the future.

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Again- welcome- just ask away if we can help you.

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Len

[JigFettler Volunteer]

Hi Jeremy. Welcome. Jig

[Poodle2]

Wow Jeremy, you have had a really long w&w, great to hear CLL didn't effect you too much during the w&w period.

I'm 40 and have known about my CLL for nearly two years but I did have it before, just didn't know. I was diagnosed during my third pregnancy - not the type of thing you are expecting to hear when you turn up for your midwife appointment...

What issues have you been having if you don't mind me asking? The usual symptoms?

Do you know what type of treatment you are likely to have since you have mentioned it?

Hope you continue doing well.

Petra

[Jmiah717 in reply to Poodle2]

Basically just a bunch of random issues that my CLL doc is not sure is related but I'm not convinced. I will likely get Venetoclax in some combo. My counts are not there yet I guess. Even though my symptoms have been issues for me (lymphs, spleen, fatigue, etc).

[Pacificview]

Hi Jeremy,A warm welcome to you. What motivated you to uncloak?....

[Jmiah717 in reply to Pacificview]

Just wanted to say hi.

[Tpdnotts]

Hello there!

[Psmithuk]

Hi Jeremy, and welcome. You are in the right place to pose questions and get good, sensible answers, and questions are helpful to others, as well.Chrisx

[Wbmason1]

Hi Jeremy, and welcome to the group no one wants to be in but since we are all here we try to make the best of. 😊. You definitely have found the right place to ask questions or just listen to others stories as so many have different experiences. It is nice to be able to come and chat with people who understand and "get it" when no one seems to, at least it is for me. W&W for 14 years is wonderful, I hope when you need to start treatment it will be just as successful!

WBMason

[Jacksc06]

Hi Jeremy. Welcome to the family.

[Pin57]

Hi J-717 - Welcome to HU! A good place to learn n lots of supporting smart folks are here.

So 14 yrs on W&W (but sorry to hear that streak maybe ending) ... 14 years is awesome , what’s your secret success to that? I’m 8 months on the W&W train and on a self-study to see if having 1 good IPA 🍺 a day will help my CLL numbers? Doubtful it’ll help CLL but what heck I’m enjoying that study.