Ibrutinib 30 months doing well,last months HTC & Hb have risen 2 the limit. jak2 tests (-) had phlebotomy, any other with both MPN-CLL ?

[antonb]

CLL and MPN

[cllady01 Former Volunteer]

Antonb, I am replying just to give your post the possibility of being nearer the top of the list and give others who might have the rare situation you have with CLL/MPN.

The following link is a conversation that was posted 2 years agot ago and might be of interest to you:

healthunlocked.com/cllsuppo...

IF you want to see about chatting with the poster or any of the repliers who have expressed having the two situations (though perhaps not identical to yours) you can click on any of the user names above post or reply and send a chat.

Hope this helps you find someone to share info you may have they don't and vice-versa.