Help going back on treatment: Has anyone had... - CLL Support

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Help going back on treatment

156MA019 profile image
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Has anyone had trouble when going back on Imbruvica after being off for 5 months

because of Covid? I can't stop from going up and trying not to get A-Fib because I was only on 2 capsules a day when I got the A-Fib. Right now I'm on 3 days of

2 capsules and 2 days of one capsule. I was doing great on 1 day 2 capsules and 2 days 1 capsule. That was my former routine and I did great. Then Covid hit and I was very ill! Any help out there?

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156MA019
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BluMts profile image
BluMts

I am puzzled as to why you came off IB for 5 months after contracting Covid 19. Were you on breathing/nutrition machinery? So sorry you've had Covid and hope you are feeling better and stronger every day.

I think you would get more useful replies if you were able to say what country you are in. I too , in my case because I like privacy, did not give my country but I came to see that it would be better if I did.

Mick491 profile image
Mick491

Hi. I came off ibrutinib for six months because of an internal bleed and have been on it now for just over a week. Touch wood no side effects and I am on the full 420. Hope things sort themselves out as the drug is very effective. When I first went on it a biopsy shown 50% cancer in my marrow. A year later that had dropped to 30%, so if you can stick with it. Good luck.

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