My new MD Anderson Doc

[showdog]

I just talked to my new doc. What a thrill to have a specialist. He said I am low risk with just 13q deletion. I kind of new this but other doctors never said it that way. How ever my platelets have been hovering at 100,000 but recently have dropped to lower 80's . He wants to check one more time to make sure they haven't gone back up. I have fluid around my heart called parscardium effusion so he wants me to see the cardiologist before treatment. He is not sure if its related to cll. I more comfortable now that I have a specialists. Its helped me alot over past 2 years being on cll society.

[GMa27]

I am 13q mutated and had 3 rounds of FCR. Very uneventful and in remission 2+ years. Since you have heart issues, be careful if they suggest Ibrutinib.

Always good to get second opinion. 💕

[showdog in reply to GMa27]

Yes we will do alcabrutinib

[may04cll in reply to showdog]

Was there any discussions concerning other treatments like V+O ? I'm beginning to think there is a preference depending on the facility.

[showdog in reply to may04cll]

We discussed all treatments. We decided to go with what zi chose because of current lifestyle and a health issue. I run a business and can't afford to be down from a trial drug. I am avoiding some of the unknown

[Lisa-1959]

Glad you were able to talk to the doctor! Agree with GMa27...a second opinion is valuable!

[showdog in reply to Lisa-1959]

I might check into your doc

[Palmetto in reply to showdog]

most likely pericardial effusion never heard of parscardium and highly doubt due to CLL

[showdog in reply to Palmetto]

I read on google its possible

[Palmetto in reply to showdog]

Hoping it is not serious. You are in great hands

[showdog in reply to Palmetto]

I want to occur the ologist 2 years ago about it everything with my cardiovascular system was running fine I am going to get rechecked before getting on the medication for CLL

[showdog in reply to showdog]

Cardiologist

[Palmetto in reply to showdog]

Learn more about this darn CLL every day. Just when you think you know a lot, something like this pops up. Keep us posted.

[showdog in reply to Palmetto]

Ok

[DRM18]

How did it happen, Showdog? In person? Or telemedicine?

—Dave

[showdog in reply to DRM18]

I went to md anderson in person

[showdog in reply to showdog]

I did talk to him on the phone after all blood work came in