UK CLL Forum Advice for CLL Patients and a survey for the UK patients - Please complete the survey if you can - *repeat request*

[Jm954]

***This is a repeat request, please complete if you can.***

UK CLL Forum is the special interest group for medical doctors in UK with an interest and working in the clinical field of CLL management. They have partnered with CLL Support (who moderate this site) and Leukaemia Care to promote a survey and provide information support.

The information hopes to specifically address the concerns of CLL patients in respect of COVID19 and can be found here: ukcllforum.org/wp-content/u...

The survey - are inviting CLL patients in the UK to take part in a survey, which will be left open for the foreseeable future. If you feel you have the virus we would particularly like your input, but the survey is open to all CLL and SLL patients and can be found here: docs.google.com/forms/d/e/1...

For those that want to see the advice for CLL doctors regarding the management of CLL patients, that is here: ukcllforum.org/wp-content/u...

Take care, stay safe

Jackie

[Sciencefan]

Thank you Jackie for all the excellent information.

I am currently on watch and wait (with limited symptoms) and have been shielding for 4 weeks...only 9 more to go!

Fortunately, I haven’t had any symptoms of COVID 19 but I have completed the survey anyway.

It’s reassuring to know that there are experts out there who are thinking of us 😊

Rachel x

[UK-Sparky]

For all those who have completed the survey, thank you. There has been a tremendous initial response. CLL Support, Leukaemia Care and the UK CLL Forum of CLL Specialists, researchers and scientists are working on the initial data received. We will put out a joint report in the next 10 days, as well as update the survey and reissue for folks to complete again or complete for the first time. Thanks for all who took the time, data on the impact of the virus on our community is vital to help with understanding the impact on CLL patients and in developing treatments to combat the virus.

Thanks and stay safe