My wbc is above 80000 so what is my majer prob... - CLL Support

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My wbc is above 80000 so what is my majer problem plz say something about high WBC count

Sunilrathod1495 profile image
10 Replies

Please help mi

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Sunilrathod1495 profile image
Sunilrathod1495
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10 Replies

whats your alc? do you have a prior blood test before this.

lankisterguy profile image
lankisterguyVolunteer

Hi Sunilrathod1495,

I see you just joined us today. Have you been diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma? And if so, what is your doctor telling you?

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We have several pinned posts that should answer your question assuming you do have a firm diagnosis.

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Please click these links:

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

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Then there are other answers in a box on this page labeled "Pinned Posts" like the first one that starts "30 tips for living well....."

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Once you have read those can you fill in your profile so we know your brief CLL history and general location to adjust our comments to your health coverage/insurance system.

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Len

Newdawn profile image
NewdawnAdministrator

Hi Sunilrathod,

You would need to provide more information than your high WBC for us to give any observations or advice.

Do you have any medical diagnosis based on your WBC and what does your doctor tell you? Which country are you from?

Newdawn

AussieNeil profile image
AussieNeilPartnerAdministrator

There are five primary types of white blood cells, so you need to first look at your white blood cell differential to see which type you have in excess. Then you need a special blood test - Flow Cytometry, to find out exactly what's happening. If the high WBC count is due to a high lymphocyte count, it depends on whether it is the B or T lymphocyte white blood cell that is in over abundance. You need to find out whether the over-abundance is due to most of them being identical clones, in other words a blood cancer. The flow cytometry test should determine if this is the case and if so, specifically which blood cancer is responsible. There are a whole range of B lymphocyte blood cancers, of which CLL/SLL, the one supported by this community, is just one of the Non-Hodgkin lymphomas. CLL/SLL is the most common adult leukaemia/lymphoma, but I hope from the above, you can appreciate that it is impossible to say right now why your WBC is high or what's causing it.

Incidentally, with CLL, it is possible to have far higher WBC count than 80,000 and not need treatment.

Neil

AussieNeil profile image
AussieNeilPartnerAdministrator

Scott, it depends on the leukaemia/lymphoma, whether a high WBC can cause circulation problems. It's extremely rarely the case with CLL/SLL, because the B-lymphocytes are small - just a bit bigger than red blood cells, hence the "small" in Small Lymphocytic Lymphoma. With other leukaemias, you can get what's termed leukostasis (symptomatic hyperleukocytosis) and "sludging" in the capillaries. I doubt that's a concern for Sunilrathod or he would be mentioning other symptoms besides his high WBC.

Neil

Newdawn profile image
NewdawnAdministrator in reply toAussieNeil

Neil, that was my concern that he hasn’t provided any additional details at all and a WBC of that level would be infinitely more concerning if it was for certain other blood cancers.

Newdawn

oldguy68 profile image
oldguy68

That 80000 is really not a number to be over concerned with, mine at one point was 302,000. I was at 135000 when I started ibrutinib. I then immediately got pneumonia was in the hospital and the white count went up to 302,000. White count last blood test was down to 68,000. Oncologist is very happy at how this is going so you can see 80,000 really not something to be over worried about. your doctor is who you need to be communicating with.

Bubnojay profile image
Bubnojay

Hi Sunil

Newdawn has given you the right answer, breathe, be calm, your count is no reason to panic. Lots of info given you may not need and will confuse and scare you. Infections of any kind raise WBC, what has your doctor advised ?

If you get diagnosed with CLL lots of us here to help and advise. Let us know how you get on.

Gentle hugs and best wishes

Bubnjay

Big_Dee profile image
Big_Dee

Hello Sunilrathod1495

There are a lot of things besides your white blood cell count that guides your trip with CLL.

My CLL Specialist told me about a patient with a one million WBC, so 80,000 not bad. Need to watch the trend over time. Blessings.

wilhoitaz profile image
wilhoitaz

My oncologist told me when my white blood count hit 600,00 that he treated one guy that hit a million--my Dr was discussing the count with a specialist in the LA area that specializes in very high counts--mentioned offhand that the blood must be like mud so thick with gunk

He got the millionaire back to a good count in 4 months

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