I am a kiwi living in what people believe to be a paradise- yes, New Zealand! It is in most respects but unfortunately not in terms of funding for required drugs for things like CLL.
We have a support group set up and there are a number of people struggling because of the high cost of the drugs required to help them maintain quality of life.
I am still in the watch and wait stage but there are several people within our network who require Ibrutinib. The cost for them to procure it here would be $10000 per month.
I am wondering if anyone on this forum has had any experience of directly importing this drug from India. I recently attended a meeting of people with blood cancer in my home town and 6/10 were successfully importing the drug they required from India with a script and a letter to NZ Customs. The price is a fraction of the price it would cost here in NZ. At this time it is completely legal.
This is a plea- if anyone has any information about this please, please let me know by way of the wonderful website.