Mum newly diagnosed

[Nuttydogs]

My mum is 81 and has been diagnosed with CLL. She has no energy at all and after more tests is due to start on IB. Will her energy levels improve and what can she do to improve her sleep

[cajunjeff]

There is an excellent chance your mother’s energy levels will improve on ibrutinib, particularly if she is taking it as her first treatment.

Insofar as sleep is concerned, I would try natural remedies first such as staying hydrated, exercising to the extent she can, meditation, taking walks, improving diet, and avoiding caffeine.

She might also discuss with her doctor what over the counter and or prescription drugs that would be appropriate for her situation. I would not be surprised to learn her sleep improves as ibrutinib works it’s magic. Some people respond quite rapidly to ibrutinib.

[Nuttydogs in reply to cajunjeff]

Thank you so much given us new hope x

[Hidden]

melatonin has improved my sleeping

[Nuttydogs in reply to Hidden]

Thank you for your tip

[Hoffy in reply to Nuttydogs]

I took my Imbruvica in the evening and that seemed to help my sleep. I also take something called 5HTP that you can get at Costco in other places to help with sleep. It’s similar to melatonin But works better for me

Be well,

Hoffy

[Nuttydogs in reply to Hoffy]

Thankyou

[Hidden]

I'm 70 ,with 17p deletion, and started taking Ibrutinib at the beginning of June. Two months of treatment led to a marked increase in my energy levels. After several years of interrupted sleep, due to excessive nightime sweats, I'm now sleeping 8 hours most nights.

[Nuttydogs in reply to Hidden]

Thank you I'm telling my mum everything from here and it's giving her hope x

[Ptown]

Hello ! Tell your precious Mum that there is a whole world-wide community of people living with CLL that are wishing her well and supporting her from afar. I am sending sunshine and support to her from Michigan, USA. Carolyn

[Nuttydogs in reply to Ptown]

Thanks so much for your nice comment x