Neuropathy from high para p[roteins

[SusanJM]

Does anyone have neuropathy from high para proteins due go B Cell cancer? I am having more tests done to determine if this is my problem. It's just awful.

[Elliot43]

Yes Susan I did. But it was after chemo treatment. I have peripheral neuropathy in several places. Perineum was the worse.. have it in left foot and toes and some in right toes,

What about you?

Sheila in oz

[SusanJM in reply to Elliot43]

It started with my feet a year ago and then crept to my ankles, shins, knees and hands. It's unbearable sometimes and stairs are the worst. I haven't driven to work since September, I have to take an Uber.

[JigFettler Volunteer]

I have a peripheral neuropathy.

Both feet, worse on left.

Its undiagnosed, my Haematologist doesn't have much to say about it.

I rather assumed its CLL related, there before chemo.

Since chemo it's sort of stopped spreading.

What to do?

Jig

[lartington in reply to JigFettler]

good morning, I do not have CLL, but my husband does. I do have peripheral neuropathy

caused by type two diabetes. I take Lyrica and Amitriptaline . I know from my husband's experiences that we tend to think everything regarding our health must be from cll, not so. hope this helps.

[SusanJM in reply to JigFettler]

See a neurologist.

[Exercisegirl]

I too have neuropathy in both feet and it’s spreading up my legs. I saw a neurologist and he did bloodwork to rule out a vitamin issue. I also had nerve testing done to be sure it wasn’t coming from my spine. It isn’t. The doctor who tested me said 90% of cases are idiopathic. We looked up just one of my treatments and Rituxin lists numbness as a side effect. He also said that cancer can also be a cause. Not fun for sure.

[orange33 in reply to Exercisegirl]

Hello i have had PN for just under 16months,I also have RA. Ita in hands feet. Ihave lost strength in fingers and hands, had all tests. Not diabetic nor had cancer. Very week walking now and have to use buggy and walker. Had Retuxamab infusions ordered by Nuero Doc. I feel now I'm now left to just cope. I will just say seen occupational therapist.i could go on. Mlne has not got better. I really wish you well and understand your suffering and worry. There are some people who do get better.

.

[81ue]

Lots of causes, and ways to treat pain. "Peripheral neuropathy can be a long-term side effect caused by chemotherapy, other cancer treatment, or the cancer itself. Other causes include diabetes, infections, injuries, alcohol abuse, low vitamin B levels, some autoimmune disorders, and poor circulation."

cancer.org/latest-news/what...