Cll America posts

[Sunfishjoy]

Hi. I’ve been posting on the cll America site. Do intl folks see these posts also? If not how do I post to both sites?

[Hidden]

i read your post on the america site. I also reread your initial post. you can't do anything about your markers. since you said you are 68 . unless you go on watch and wait-you'll probably start with ibrutinib or acalabrutinib then go from that. the novel drugs seem to work no matter what markers you have however how long is the question. you might also get combo drugs. You'll just have to wait until your doctor gives you your options.

[PlanetaryKim]

I think you would have to make a separate post to each site, Babsnyc. I normally just read this site (CLLSA) because it's the most active. But I did go look at CLL America to see your post. However, I don't normally visit that HU forum/community, because it isn't as active as this one.

As for your question about your markers, and treatment - it really depends on what your symptoms and your current blood counts are. That's more relevant than markers. You may still be in watch-and-wait stage. Let us know what your doctor says.

kim

[MsLockYourPosts Passed Volunteer]

You can “follow” both sites and copy and paste what you have written on one site onto the other. You will have to restrict your posts separately if you want them and replies to them, to go to “community only” to protect your privacy and that of anyone who comments.

[michaelmac]

Hi

A little help,please

I'm not familiar with " cll America"

could you copy the URL in a reply please ,,,, or another way to find it it.

Thanks

Michael

73 year old male

Starting second line treatment ,,,,USA