SCA: Just found this site. In 2015 my husband... - CLL Support

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margieono profile image
32 Replies

Just found this site. In 2015 my husband was prescribed Imbruvica for CLL. He took one dose and passed away the next morning from sudden cardiac arrest.

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margieono
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32 Replies
SherriD profile image
SherriD

Omg that’s horrible! I’m so sorry. I am very new to this site and also newly diagnosed late March. How old was your husband? Was he aware of any heart problems before that?

The fact that you just found this site and it’s been close to 3 years since he passed tells me you must still be questioning and hurting. I hope you find some answers or comfort 🌹

margieono profile image
margieono in reply toSherriD

Thank you for your good wishes. I am still hurting. He was 71 and we were married 45 years. He was not ill until the CLL.

Jm954 profile image
Jm954Administrator

I'm sorry to hear that, it is so sad. What a terrible thing to happen, with CLL or no CLL.

His passing must have been quick for him which is a blessing but a shock for you, leaving you with unanswered questions.

margieono profile image
margieono

Thank You! Been over 2 years and I still cry every day.

Jm954 profile image
Jm954Administrator in reply tomargieono

Do you have children/family and friends to support you?

barger1951 profile image
barger1951 in reply tomargieono

Sorry to hear that. I had open heart surgery 2 years before taking Imbruvica. I too have issues with it and how it effects me everyday (major palpitations et). What I do know is the last thing your husband would want is for you to be sad. I know you can do it!!!

Barger1951

margieono profile image
margieono in reply tobarger1951

Thank You for your good wishes.

margieono profile image
margieono

Yes I do thank you!

Hi Margie,

So sorry to hear of the devastation of losing your husband of 45 years. I’m sure the pain is debilitating for you. I feel even more blessed that Ibrutinib is working for me for nearly a year and a half with no negative side effects. Your story is a wake up call for each of us to appreciate the beauty in the world around us. Be sure to let your loved ones know how much they are loved. Prayers that each day will get easier for you. I’m sure he was an amazing man if the two of you were married 45 years. Thanks for sharing a piece of your life with us. All the best. Sally

margieono profile image
margieono in reply toCLLCalifornia-USA

God bless you!

CLLCalifornia-USA profile image
CLLCalifornia-USA in reply tomargieono

And you also❤️

Bramleys profile image
Bramleys

I am so sorry. That must have been awful for you.

All best wishes

Clare

margieono profile image
margieono in reply toBramleys

God bless you!

nvp815 profile image
nvp815

My most sincere condolences to you. It is such a sad story especially after just starting a new medication that offers so much promise to many. I hope you are able to find peace in your heart at some point. It can be a very long process but hoping you find comfort in loving memories of your husband.

Warm regards,

Nan

margieono profile image
margieono

Thank You for caring!

ladyprescott profile image
ladyprescott

Hello Margie... I am so sorry to hear about your tragic event losing your husband. Do you know if it was actually caused by the Imbruvica? A terrible experience for you. Please know that people on this site care very much. You can come her often and I welcome you. Carole

margieono profile image
margieono

I don’t know if it was the meds but other than the CLL he had no heart problems.

Fran57 profile image
Fran57

Hello.

I'm so sad to hear about your husband.

We have been married 40 years and my husband, who has CLL, is the love of my life. I can only imagine how hard life must be or you.

Stay strong.

Fran x

margieono profile image
margieono in reply toFran57

Treasure each day

Fran57 profile image
Fran57 in reply tomargieono

I absolutely do; thank you x

Philipoc profile image
Philipoc

That is truly the. I’m so sorry to hear about this. I wish you all the very best Margie

margieono profile image
margieono in reply toPhilipoc

Thank You!

Tbodtockwriter profile image
Tbodtockwriter

So sorry to hear about what happened to your husband. I hadn't heard of any previous experiences like that. Did he have any previous heart problems? I wish you the very best.

margieono profile image
margieono in reply toTbodtockwriter

No his only health problem was CLL which he had been diagnosed with the previous August.

dmmck profile image
dmmck

So sorry to hear about your husband. I would be heartbroken if that happened to my husband. I pray that you find comfort and peace in your heart soon.

margieono profile image
margieono in reply todmmck

Thank You. I still cry every day

Corkyrissa profile image
Corkyrissa

Margie I’m so sorry to hear this. I have cll and have been taking imbruvica for8 months. It breaks my heart for you to go thru this. You must have so many unanswered questions. I have been married 56 yrs and worry about my husband because of his heart issues. When I think of his problems it brings tears to my eye because I can imagine the loneliness to lose the love of your life. I will add you to my prayer list praying our Lord grants you peace and strength. 💔😘❤️😘

margieono profile image
margieono in reply toCorkyrissa

🙏

Newdawn profile image
NewdawnAdministrator

What an unexpected and absolutely dreadful thing to happen margie. I’m so sorry to hear this as he sounds to have been a healthy man prior to the CLL diagnosis and this could not have been anticipated. A sudden passing like this is so much harder and it’s clear you had a very precious, long marriage.

Sending you immense best wishes. Grief has no time limit and some people are just irreplaceable but I hope you can find some peace and happiness in the future.

Newdawn

margieono profile image
margieono in reply toNewdawn

Thank you for your kind words

pkpayne profile image
pkpayne

Margie that must have been just heart wrenching for you. I am so sorry for you loss. I've been married almost 52 years now but I am the one with CLL. I try to do all the things I can do while I can do them and enjoy the things in life that I value most. I hope you will be able to find comfort in the not so distant future.

Paula

margieono profile image
margieono in reply topkpayne

Cherish each day!

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