CLL Support Association
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PAIN IN THE NECK AT THE COLAR BONE

Diagnosed with CLL 2 years ago, lymphocytes in the 20,000 range on wait and watch. Since last year I have extreme pain on the nerves on each side and worst on the right side. It feels like an abscess, stabbing pain. Does anyone experienced this type of symptoms? I also have thyroid issues and swelling. Your input is appreciated.

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This is not uncommon what you describe, enlarged nodes can press on nerves and they may tend to get larger and get worse pain and then shrink and pain lessens.

You need to see your Cll doctor to have this assessed... nobody should be in pain... failing that get to your GP as soon as possible.

~chris

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I had intense pain at the back of my head above my neck. It was so painful I couldn't rest my head on a pillow except at an odd angle. I took Tramadol and it fortunately went away after a while.

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