Hello everybody...hope y'all are doing well. I have had this belly thing going on for a year and have been questioning my doctors (gastro and primary care) about it and they kept telling me it's part of the descending colon. A couple of weeks ago I told my hematologist's nurse practioner who upon examination agreed that the perpendicular structure is the colon. She said she couldn't palpate my spleen even though I told her the CT scan a year ago showed my spleen to be diffusely enlarged. She said it would have to be at least double in size for her to feel it. Anyway, I had a check up today with my primary doctor and I think he said he could feel it...don't remember and of course my non supportive husband didn't come in the exam room with me...long story short I am having the scan tomorrow and am scared to death of what it will reveal. I have had so many different doctor appointments this month that my head is spinning and, the end of the month I go to see my pulmonologist because a chest CT scan a couple years ago is suggestive of MAC....mycobacterium avium complex. This could be the reason for my chronic cough and shortness of breath. When I was diagnosed with it he said he wasn't going to treat it because I was asymptomatic. I have been so worried, depressed and angry that some days I just want to give up. Trisomy12 no 11q and no 17p deletion and unmutated. If any of you are the praying kind please keep me in your thoughts and prayers as I will you.