On a different forum a member of the CLL community, Eliot asked about patient experience with Dermatomyositis. Here was my reply to him and others with skin problems.
The condition of Dermatomyositis and its diagnosis can be complex and you need assurance that your condition is in fact accurately assessed. This paper is just a caution for questioning diagnostic assessment.
From that starting point it is worth knowing that Dermatomyositis is in the minority camp of non-hemolytic autoimmune complications of CLL.
ncbi.nlm.nih.gov/pmc/articl... From the Introduction: "Dermatomyositis (DM) is an inflammatory myopathy affecting skin and skeletal muscle. The pathogenesis of DM is complex, comprising both immune and non-immune mechanisms."
Most autoimmunity in CLL is confined to AIHA (Autoimmune Hemolytic Anemia) and ITP & (Idiotype Thrombocytopenia Purpura). While I have no direct experience with Dermatomyositis or similar conditions the best understanding for what is causing your condition is from an academic center and preferable to attempting to find a patient-template to follow. Below are some potentially helpful articles for you and others with similar skin complications to formulate some good questions for your doctors in pursuing a path to therapy.
sciencedirect.com/science/a... Four dermatomyositis-specific autoantibodies ...
tandfonline.com/doi/abs/10.... Large local reactions to mosquito bites ...
journals.plos.org/plosone/a... Origin of B-Cell Neoplasms in autoimmune disease.
Hope this helps.