I was diagnosed in August 2016 following an unexpected collapse at home ages 47 ( to the day!) Having tracked my bloods for 6 months I was told to go live my life and forget about CLL. As far as I was concerned W&W was going to be my constant state for 10, 15, 20 years and life would be fairly normal.
In February, just before my next planned trip to the Consultant, I had a chest infection and was advised to have my bloods taken too. The next day the dreaded call came to say that WBC and Lymphocytes were accelerating and treatment was needed sooner rather than later. My hopes of a long wait were dashed and my mortality was again at the forefront of my mind.
I saw my consultant the following week, and having said I would be interested in being part of any trials at an earlier meeting, I was told that I might be eligible for the FLAIR trial and that the process would begin with CT, bone marrow etc. Sadly my usual hospital was unable to prescribe at that time so I was to transfer to the Birmingham Queen Elizabeth hospital some 40 miles away.
I was soon with them being assessed, drained of gallons of blood, scanned, poked but I cannot praise them enough. Each and every person that I have been involved with have been so caring and kind.
On Thursday I received the news on my poison and it is to be the Ibritinin tablet. So this week I have 3 trips: Wednesday for 1st tablet, Thursday for half of the antibody and Friday for the balance. I have planned childcare, hubby is ready to be chauffeur (that will be fun driving my automatic through Birmingham whilst I sit with my head in a bucket no doubt), and have prepared my handover at work.
I am nervous, excited and eager to get this show on the road. I am a positive person and a fighter. I have a high pain threshold and really hope it will stand me in good stead for any aches and pains that may come my way.
I can and I will do this!