CLL Support Association

SLL with unexplained history

Hi, I was diagnosed this past November, 42yo male. I have the SLL variant. My story is that I experience classic B symptoms 18 mo before my diagnoses. For 8 weeks I has low grade fever with occasional spikes, serious fatigue, a little itchiness, no other symptoms. It went away, I developed an enlarged lymph node shortly thereafter, and I was diagnosed over a year later.

Currently my numbers are virtually normal. Anyone else out there experience this type of progression. Two specialist did not have a ready explanation.


3 Replies

Hi Alexander and welcome to our community, which no one wants to join, but where we find mutual support and tips on how to live better with this chronic leukaemia/lymphoma.

I was diagnosed with stage 4 CLL/SLL 8 years ago (but met the SLL criteria of a lymphocyte count under 5) and had similar symptoms to you before and after diagnosis. Before diagnosis I had occasional night sweats, then a CMV infection shortly after diagnosis left a legacy of low grade fevers with occasional spikes and serious fatigue. Unfortunately my blood counts were not normal and I've had neutropenia for the last 8 years. My SLL became CLL 18 months after diagnosis. Encouragingly I'm still in watch and wait and my fatigue is manageable unless I overdo it.

Everyone's journey with CLL/SLL is different. Fatigue doesn't correlate with lymphocyte count, a fact I can well verify.

Are you experiencing B symptoms or serious fatigue now? Hopefully you'll escape the need for treatment as about 30% of us do.



Thanks for the reply. Not experiencing any B symptoms. Managing fatigue and inflammation is basically it right now.

1 like

SLL Husband has fatigue, itchy skin, bulky lymph nodes and many infections during last 10 years


You may also like...