I'm having a bad day and thought you guys could possibly be the only ones that would understand.
I have posted before - I was diagnosed May 2016, a 53 years old healthy lady. I chose to tell immediate family and 3 others.
Anyway, I'm feeling lousy today ( we are currently sitting on 37 degrees Celsius here in Queensland) . I've had a lot of pain in my left leg lately from the hip right down to my foot - it doesn't feel muscular , it feels like my bones are on fire. When I lay down at night, that's when it really starts.( so quite a few sleepless nights) . I've also been more tired than I though was possible and suffering from an upset tummy and bowel. I rang to see a doctor today and they're booked out , the receptionist asked if I was unwell and when I tried to explain that I had CLL , well, that was the last straw - I broke down . I tried to explain to my beautiful supportive hubby who was mopping my tears that I HATE having to say that I have CLL every time I need to go to the doctors. It just brings it all flooding back - the uncertainty of my future , the sick feeling I get when I feel something's not right and I think "this is it, it's starting" , it all just got a bit much.
Not to forget my "super supportive friend" who says that we all have to go sooner or later and that nobody knows what their future holds! ( just for added benefit she did some Tarot cards and she happily told me my "death" card didn't come up so I should be ok!!!!) - with friends like that eh???
Anyway, I'm still waiting from a call back from the doctors as I type.
I know today is only a hiccup but I had to get it out there.
Happiness and health to you all 😊