Spleen pain?

Hiya everyone. I was wondering if those of you with an enlarged spleen could let me know what it feels like?

I have had a pinched feeling just under my left bottom rib for about two weeks now. If feels like I have a stitch or trapped wind but it's just not going.

I've made an appointment with my GP for 21st October and I see my consultant on 17th November.

I'm on watch and wait. No treatment yet. Thank you.

13 Replies

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  • That describes just how mine felt Cindy and an ultrasound confirmed a slight enlargement which hasn't caused any significant problems since.

    I'm still aware of it especially like now when I wake. A stitch feeling describes it well. Does it pinch more after a large meal?

    Your Consultant will probably palpate the area to see if it can be felt and may suggest an ultrasound. The thing to watch with the lab results are RBC, particularly haemaglobin and platelet levels because the spleen impairs their production as it essentially clogs up.

    Hope all goes well and nothing to get unduly concerned about at an early stage as the errant lymphocytes tend to migrate to the spleen in CLL so some enlargement isn't unusual. It's important to watch for increasing discomfort and impact on blood results however. My platelet levels have dropped slightly.

    Best wishes,

    Newdawn

  • Thanks Newdawn. Yes it does get worse after a large meal and if I bend over. It's not painful just uncomfortable. It puts my mind at rest that you say it's not too concerning. I was working myself up thinking that they may start treatment earlier than necessary. I hope you have a lovely week. X

  • Cindy, I have had pain in that area for about 6 years. There has been no MD who has considered my complaint to be worthy of a scan. The RN and Dr. both palpated to see if there was any enlargement.

    I have not know if it is spleen or if it is crowding the intestine. My spleen is said to have many lesions on it (MRI done in earlier years). And, yes the feeling of fullness after eating and for most of the time is uncomfortable.

    I use an ice pack at night on the left side of my abdomen, which helps me to sleep.

    Newdawn, thank you for the info re: RBC, Hgb, and platelets related to the spleen--something I am beginning to get concerned about. (Not at a crisis level, just lower than normal and dropping.)

  • Cindy, the spleen performs an important function of removing ageing old platelets and red blood cells for recycling. As it enlarges, platelets and red blood cells pass through more filtering, so they are removed earlier than desirable. en.wikipedia.org/wiki/Spleen

    With CLL infiltrating the bone marrow, production of replacement platelets and red blood cells is constrained, so these counts fall.

    CLL treatment shrinks the spleen and cleans CLL cells out of the bone marrow, so blood counts recover.

  • Thanks AusieNeil

    The body is an amazing complex machine!

    Cindy.

  • Hi Cindy,

    When my spleen was massive, I felt a fullness in the left upper quadrant of the belly and a general heavy feeling.

    I had it removed for my ITP but it didn't help.

    Stay strong. We are all in this together

    Brian

    CLLSociety.org

  • I fear each person's feeling is different.....When mine came out (to stop AIHA) it was over 12 times the size it should have been. I never felt any discomfort even though it had grown to that size....!! So what you are feeling might be your spleen...or it might be something else...... in my experience, some docs can feel expanded spleens, some cannot....hope your GP is one of the former!

  • Thank you Quarry. I suppose it could by a symptom of my IBS. I will let you know what my GP says.

  • I have had a similar feeling symptom past 3 weeks. Had been in hospital with a kidney infection a couple of weeks ago that came out of nowhere. Have had confusing back and side pain. My internist said it was condochondritis of the the ribs (cartilage hardening with age- delightful- and can be painful). Urologist says it was infection. Yet it persists. Worse sitting down. Seeing my onc on Nov 1. Hope now problem in waiting. It just feels like a guessing game sometimes. I am on watch and wait since March 2014.

    Great website!! Thank you!

  • I can say mine feels great again after FCR treatment that I completed last year. I do remember living with an uncomfortable spleen for some time before that treatment, I just had to be careful not bending and keeping the back straight. In my case it was one of the eventual drivers to start treatment.

    Best regards,

    Ernest

  • That's what I'm worried about Ernest. I don't want to start treatment because my spleen is swollen if my blood results are still ok. I suppose I'll have to trust my consultant. I'm glad you feel better after treatment.

  • Spleen enlargement is a reasonably common symptom in CLL. Mine was found to be enlarged on physical examination at diagnosis and a CT-scan confirmed that (but reassuringly also showed it to be less enlarged than the specialist thought). It hasn't changed noticeably in size in over 7 years and I'm still on W & W.

  • Thanks Neil. You've helped to stop me panicking.

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