Week 2 at OSU Trial: Hi everyone, Today, I was... - CLL Support

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Week 2 at OSU Trial

thompsonellen profile image
17 Replies

Hi everyone,

Today, I was back in Columbus for week 2, and the first full 1000 mg infusions of obinutuzumab. They only gave me 2 of the 5 "pre-medications" because I tolerated the drug so well the first week. The only side effect was the benadryl made me drowsy.

My counts were (before today's infusion):

White Blood Count 14 down from 92 last Tues (normal high 11)

Red Blood Count 3.31 down from 3.39 last Tues, but up from Wed (normal low 3.8)

Hemoglobin 9.8, slightly up from 9.7 last Tues, but up from Wed (normal low 11.7)

Platelets 165, down from 179 last Tues but up from last Wed (normal low 150)

Absolute Lymphocytes 10.92, down from 82.80 last Tues.

My liver continues to work overtime to get all these toxins out of my system, and while still high, the counts are way better than last week. It's harder than I thought it would be to stay hydrated.

My lymph nodes also continue to recede nicely. Needless to say, everyone is pretty happy so far, including Dr. Byrd who stopped by briefly.

Last week, I felt really good the first couple of days I was home, but was quite fatigued over the weekend. I'm hoping that it doesn't hit me that hard again.

Speaking of potentially tiring situations, I made it out today in record time only to find out my flight was cancelled, so I'm on a 5:40 am flight tomorrow. I'm not looking forward to waking up at 4.

That's all for now. Looks like these posts may get a little boring if they are filled with mostly good news, but in the hopes it helps someone, I'll keep posting.

And as always, let me know if you have any questions.

Ellen

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thompsonellen
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17 Replies
debs24 profile image
debs24

Great results, Ellen! Keep those "boring" good news stories coming!! ☺

Boring is good Ellen. It's great news that you are doing so well. Stay strong. Sally

wroxham-gb profile image
wroxham-gb

Good news is never boring Ellen. Hope you caught the flight ok.

Sue

terryI_uk profile image
terryI_uk

Good results Ellen, we like to hear good news! Terry

Elslee profile image
Elslee

Happy for you hang in there

GratefulOne profile image
GratefulOne

So happy you have "boring" news! Sorry about the flight situation. I'm sure you are looking forward to getting home!

tekusa profile image
tekusa

Great News! Except for the weekend fatigue. I suspect you are in transit to your airplane at this time (4:38 right now). All the best!

thompsonellen profile image
thompsonellen in reply to tekusa

Yes. Just got on the plane!

Justasheet1 profile image
Justasheet1

I'm proud of you. Safe travels too.

Jeff

virdieblue profile image
virdieblue

Please!!! Bore us with good news - we can take it!

Carpenters52 profile image
Carpenters52

Great news for you!

All the best!

Kelly

Jill4 profile image
Jill4

👍😅💃 yeah!

napa profile image
napa

Please keep posting the updates. I'm interested in your results. Thank you.

Justasheet1 profile image
Justasheet1

Be well. Thank you for the updates. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Jeff

PE1234 profile image
PE1234

Great news .Keep posting ,you can bore me anytime with news like that .👯👯👯

lexie profile image
lexie

Sounds good, nothing extreme!

casanova profile image
casanova

Always great to hear good news. Keep that positive attitude and keep posting.

Maureen

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