I have 13q deletion CLL and, apart from fatigue, have almost no other symptoms. I used to get night sweats but they are now very rare. I'm beginning to consider what treatments will be best for me when necessary. My consultant Martin Dyer at Leicester Royal Imfirmiary has moved into full-time research, although he's happy for me to email him. At our last conversation he mentioned the development of new treatment with which he was involved that - apparently - may make CLL "as treatable as diabetes", although I'm not yet sure what this is.
Below are the results he emailed to me last, with the comment "this is all good!":
…has a clone with heterozygous 13q-deletion (49%)
Karyotype: nuc ish 6 (CEP6 x 2, TNFAIP3x 2, PRDM1 x 2) , 8q24 (MYC prox x 2, MYC dist x 2), 11 (CEP11 x 2, ATM x 2, FDX x 2), 12q13 (DDIT3 prox x 2, DDIT3 dist x 2), 13q14 (D13S319 x 1, D13S25 x 1), 14q32 (IGH prox x 2, IGH dist x 2), 17 (P53 x 2, MPO x 2)
Vh 2-5 mutated (90.1)
I'd appreciate your thoughts.